MAN, it's been a LONG time....and I'm still alive! :)
Well, since my last post, nothing much has been happening. I'm still going in three times a week to check my blood counts and as of today....my white blood count is a 2.9 (this fluxuates based on how much "infection" or "virus" i have been exposed to), my hemoglobin is an 11.3, my platelets are a 250, and my red is like a 3.2 (i think).
With that being said, I started RUNNING again today and MAN OH MAN was it BRUTAL!! I got up and got ready to face the cold (it was 28 degrees this morning!!!) and in my mind, I thought to myself....okay, so Ill just do a quick mile and then go and get my blood drawn. simple right??
WRONG!!
OMG, I took off running and I thought to myself, okay this is good....5 steps out and I'm feeling real good. 10 steps in....okay, time to slow it down.....20 steps in.....holy crap, what did I get myself into?! lol. So long story short, instead of being a stud (like I usually am) I took turns and walked and jogged the whole mile.....it took me 15 minutes! I should've just walked the entire time. oh well. I'm ready to start my weight lifting program as well. I thought about doing squats or something but.....I didn't. LOL. baby steps right?? lol
During my "run," my lungs were starting to hurt, my back was hurting, and my poor legs were barely hanging in there. Man, am I in for the long haul....especially after my transplant. ugh.
SPEAKING of my transplant...it should be happening in ONE month. I'm doing one more round of chemo, I have to get an intrathecal injection, and see a cardiologist (to make sure my heart is strong enough to go through the transplant. THEN...it's on.
So the doctor said rather than an actual bone marrow transplant (because they couldn't find a good enough match) they're going to do a blood cord transplant....as in taking the new stem cells from a baby's umbilical cord and putting them inside of me hoping that they take to my body and it'll take a much longer time for me to recover. it's going to be a long hard struggle but I think I can handle it. The first blood cord transplant was done in 1988 so it's still fairly new. The survival rate is 60% after it's all said and done. Luckily my doctor grabbed me TWO blood cords, so my chance of survival is 120%! lol, okay i'm lying....still 60%. lol.
Well, that's all I have for now. Tonight I'm going to Taft to help collect money for the wrestling match. I'm pretty excited to do this because I just miss being there...and at work (i'm sure I'll regret saying that later, lol).
Okay well, until next time....adios! :)
kim
Monday, November 12, 2012
Thursday, October 18, 2012
Day 557: Waiting
Whhhhooooaaaaa........it's been 15 days since I updated you all on my health progress. Many of you probably think I'm dead or something....okay, not funny. Lol. Anyways, not much has happened (good right?). The last time I updated it was the nigh before my birthday and I was in the hospital. Well they didn't start chemo until midnight on my bday. I didnt really tell anyone it was my birthday they just kinda noticed it in my file or on my hospital band. Then it spread like wildfire from there. The whole floor got me a cake and sang happy birthday to me (embarrassing) then my brother came down from Germany and they brought me a cake. I just realized I didn't have any cake at all.....hmm.then the next day, my real doctors nurses called me from the cancer center and sang me happy birthday as well.
After 5 long days in the hospital I was fine and didn't run any fevers (I think bc this dose was a whole lot less strong than the first dose..... Or so my doctor says) or get sick in anyway so I went home. Then on day 9 of chemo I came back to the cancer center and got another small dose of chemo. Which really wasn't that bad. My sister brought me to the cancer center and we slept the whole time. It was lovely.
So that was Monday and then come to find out, I was like deathly low on platelets.....a 5!! holy cow! That was lower than when I first came in 2011! But the weird thing was that I didn't have any signs of it. Like bruising or anything .....it was crazy. I guess my body functions on low stuff anyways. Lol. Then of course, my hemoglobin was low (7.1....even though i never felt Like it) so I came in on Tuesday and got 2 bags of platelets and one bag of blood....so Tuesday I thought I was done....noooooo. Wednesday I woke up and was tired. Not like sleepy tired but just walking around tired. Like I had to sit everywhere I went. It was bananas. And I kept thinking.....man I just got. Loos yesterday and I was good enough to go walking with Emily and Liz yesterday.....and I went in to get more labs taken and what do you know, my hemoglobin was low AGAIN. A 7.4 this time. So now today is Thursday and here I am getting more blood.....awesome right? Yes! Lol.
Okay I'm going to watch some tv and get off here. I love you all. :)
Sorry for the lonnnnggg wait.
Xoxo
Kim
After 5 long days in the hospital I was fine and didn't run any fevers (I think bc this dose was a whole lot less strong than the first dose..... Or so my doctor says) or get sick in anyway so I went home. Then on day 9 of chemo I came back to the cancer center and got another small dose of chemo. Which really wasn't that bad. My sister brought me to the cancer center and we slept the whole time. It was lovely.
So that was Monday and then come to find out, I was like deathly low on platelets.....a 5!! holy cow! That was lower than when I first came in 2011! But the weird thing was that I didn't have any signs of it. Like bruising or anything .....it was crazy. I guess my body functions on low stuff anyways. Lol. Then of course, my hemoglobin was low (7.1....even though i never felt Like it) so I came in on Tuesday and got 2 bags of platelets and one bag of blood....so Tuesday I thought I was done....noooooo. Wednesday I woke up and was tired. Not like sleepy tired but just walking around tired. Like I had to sit everywhere I went. It was bananas. And I kept thinking.....man I just got. Loos yesterday and I was good enough to go walking with Emily and Liz yesterday.....and I went in to get more labs taken and what do you know, my hemoglobin was low AGAIN. A 7.4 this time. So now today is Thursday and here I am getting more blood.....awesome right? Yes! Lol.
Okay I'm going to watch some tv and get off here. I love you all. :)
Sorry for the lonnnnggg wait.
Xoxo
Kim
Wednesday, October 3, 2012
Day 546: My Birthday Is Tomorrow!!
Well, what can I say? Life has been great! I painted furniture (alot of furniture), went shopping, ate out wherever you can think of, all while still having cbc's done three times a week, and now....I'm back in the hospital room. :( :( I knew this day was coming but I guess I didn't expect it to come so quick. I had a bone marrow biopsy this morning at 11 and it was fabulous! My doctor was awesome because she said okay you'll feel a stick and a burn, and.....nothing. Then she said, "okay we're at the bone now" and I was still waiting for the stick. Crazy right?!
So anyways, she had mentioned something about going "in" and both my mom and I were caught up with her words. Then I asked about the transplant and whatever else we had our minds on and she said, "oh, I didn't know you didn't know about what was going on." so I forgave her and I said it was okay. Then she leaves and sends in her nurse who i had no idea who it was to apologize and it just made me uncomfortable and I started crying?? It was weird anyway. So then we go home and my mom washes the blankets and stuff and gets ready to go. I moved around a little and did as much as I could getting my clothes and shower stuff together. Having a bone marrow biopsy hurts....so anyways, tomorrow is my birthday, October 4th, and I have my brother flying in from Germany at 2pm tomorrow and I'm excited! I wish he came a little later but oh well. So it should be good. I'm just ready to get out and go out to eat with my family....except my dad who is still working away in south Dakota.
Well, I'm sleepy so I'm gonn turn on the tv and go to sleep! :)
Have a good (fun) night tonight......
Xoxo
Kim
So anyways, she had mentioned something about going "in" and both my mom and I were caught up with her words. Then I asked about the transplant and whatever else we had our minds on and she said, "oh, I didn't know you didn't know about what was going on." so I forgave her and I said it was okay. Then she leaves and sends in her nurse who i had no idea who it was to apologize and it just made me uncomfortable and I started crying?? It was weird anyway. So then we go home and my mom washes the blankets and stuff and gets ready to go. I moved around a little and did as much as I could getting my clothes and shower stuff together. Having a bone marrow biopsy hurts....so anyways, tomorrow is my birthday, October 4th, and I have my brother flying in from Germany at 2pm tomorrow and I'm excited! I wish he came a little later but oh well. So it should be good. I'm just ready to get out and go out to eat with my family....except my dad who is still working away in south Dakota.
Well, I'm sleepy so I'm gonn turn on the tv and go to sleep! :)
Have a good (fun) night tonight......
Xoxo
Kim
Tuesday, September 25, 2012
Day 539: Don't Call Me Sir, Call Me Survivor...
Well not much has been happening around here. Sunday, we met my sister for brunch at Hefner Grill and then we went to Big Lots! and Pets Mart and walked around. We ended up buying my cat (Einstein) a cow costume but it was too small when we put it on him. It was quite funny though and gave us a few laughs. Then my sister had to go to work and my mom and I went to Kohls, Dollar Tree, and Jo-Ann Fabrics. We then my roomie cooked for us and it was great! She cooked like some sort of taco salad thing she found on pinterest. It was a good night and we went to sleep early.
Monday, we woke up early to get to the OU medical center lab. We left around 8:15am and stopped at 7-11 and got us some snacks to keep myself up. I was so tired. Then we got there and I felt good about everything. About my WBC, my HBC, my platelets, everything. And of course, I was right. I feel great but I'm still wishy washy about my HBC. I know when it's below 7 and when I need blood but I'm still on the edge about when it's a 7.7 and a 8.5. I know that's a huge jump but it's true. I feel good either way. But anyways, my HBC was 8.6, my platelets were a 51 (!), and my WBC was a 1.9! I mean, yay!! My counts are finally coming up on their own, FINALLY!! So then after they said, Kim you can leave! I was like, okay, let's go! and got up and ran out. lol.
After we left we went to subway to eat and then we went home and I crashed. I slept all day! Meanwhile, I guess my mom cleaned out the car. Who would've known. lol. That's pretty much it, it's been pretty slow around here...oh and today we did nothing but sit around and rot. lol.
Well, that's all I got for today.
Hope everyone has a great day! :)
Kim
Monday, we woke up early to get to the OU medical center lab. We left around 8:15am and stopped at 7-11 and got us some snacks to keep myself up. I was so tired. Then we got there and I felt good about everything. About my WBC, my HBC, my platelets, everything. And of course, I was right. I feel great but I'm still wishy washy about my HBC. I know when it's below 7 and when I need blood but I'm still on the edge about when it's a 7.7 and a 8.5. I know that's a huge jump but it's true. I feel good either way. But anyways, my HBC was 8.6, my platelets were a 51 (!), and my WBC was a 1.9! I mean, yay!! My counts are finally coming up on their own, FINALLY!! So then after they said, Kim you can leave! I was like, okay, let's go! and got up and ran out. lol.
After we left we went to subway to eat and then we went home and I crashed. I slept all day! Meanwhile, I guess my mom cleaned out the car. Who would've known. lol. That's pretty much it, it's been pretty slow around here...oh and today we did nothing but sit around and rot. lol.
Well, that's all I got for today.
Hope everyone has a great day! :)
Kim
Saturday, September 22, 2012
Day 536: life is good
Its been a great last few days. We had an early start out of here (around 830) on wednesday to go to my oncologist appt. I asked for sleeping pills and some sort of muscle relaxer....They gave me some hydrocodone (?) and some sort of sleeping pill ( not ambien) that seems to work well. Then we went to target and I managed to walk through that place. It was rough and I couldn't stop bc I knew I would start cramping in my legs so I kept it moving. Except when I got to the checkout line, my legs were really cramping and I gave my mom my card and went to the food area and got myself a drink. Then we went to Sams Club and I didn't quite make it through there without a wheel chair thing. But that's okay. Then we went to hideaway pizza and got us some lunch. And it was customer appreciation week!! So it said we got to spin the wheel after we fill out a card and finish ordering, my mom was like ahhhh, I just got water! When I went up there and this guy of course before me goes and wins a visor. Hahahaha! There were other things like a koozie, tye dye shirt, etc. so I spun it and I got the only 100% off entire meal! Yay! So I tipped the guy $5....then we came home and we rayed in the rest of the night.
Thursday all day I slept most of the day. Then at 230 my mom took me to my first cross country meet.....I was super excited about going because it was my first one. But it took forever!! We didn't get finished around 7 and got back to the bus stop around 740. It was certainly a long time. Then we met my sister at buffalo wild wings ordered to go and went home and ate it. It was a g good night.
Then Friday we started early and went to the lab in the hospital and turns out, I needed platelets on Wednesday but since I got my labs done at the cancer center (only bc I had a doctors appt) they never relayed me the message. So I got it and blood yesterday. I forgot to ask my white blood counts so I won't have those up and running until Monday. I slept most of the time while I was there and wanted to sleep afterwards but then we went to michael's afterwards and I bought some pinterest things I could do. Then later that night I decided I wanted oranges and other random Walmart things so we left around 8 and came home around 9. Then stayed up until 11 and went to sleep....
Not too exciting but that's all I got and as exciting as it gets.
Love you all,
Kim
Thursday all day I slept most of the day. Then at 230 my mom took me to my first cross country meet.....I was super excited about going because it was my first one. But it took forever!! We didn't get finished around 7 and got back to the bus stop around 740. It was certainly a long time. Then we met my sister at buffalo wild wings ordered to go and went home and ate it. It was a g good night.
Then Friday we started early and went to the lab in the hospital and turns out, I needed platelets on Wednesday but since I got my labs done at the cancer center (only bc I had a doctors appt) they never relayed me the message. So I got it and blood yesterday. I forgot to ask my white blood counts so I won't have those up and running until Monday. I slept most of the time while I was there and wanted to sleep afterwards but then we went to michael's afterwards and I bought some pinterest things I could do. Then later that night I decided I wanted oranges and other random Walmart things so we left around 8 and came home around 9. Then stayed up until 11 and went to sleep....
Not too exciting but that's all I got and as exciting as it gets.
Love you all,
Kim
Tuesday, September 18, 2012
Day 532: Yes, I Thought Right.....
Yayyyyyyyyyyyy!!!!
I'm out of the hospital. I technically got out last Friday after a bag of blood and platelets. They were hesitant on blood but I was at a 7.3 on the hemoglobin scale and an 11 on the platelet scale. So after we got out we took a trip to the mall to find me some shoes and Bridget bought a lot of OU stuff for us. Then we didn't stay very long bc we were hungry! Well, I was anyway. Lol. So we went into Elephant Bar Restaurant, one of my favorite places to go ever, and we had some good lettuce wraps and of course our entrees....which, I'm not used to eating very much as it is so this was a push for me!
After we finished our yummy meals, we ran into Emily at home and I was exhausted. Then, I didn't even to try to think about my ambien....which is horrible because I was up half the night but didn't get anything accomplished. Maybe I'll wait a a little longer to stay off of them to pull their act together.....okay maybe not. Lol.
Saturday came by and since I was up and thinking and it seemed like I knew what I was suppose to be doing, i woke up my mom and we agreed that at 545 my mom told me she would take me grocery shopping at 630. So she went into the living room with my sister and laid down on the couch. Then once I was ready I went in and it was freezing!! I sat down and I said omg, I'm an ice cube! Poor me. I played a little with Eins and eventually went back to my room. Come 9:00 am, I hear both my sister & my mom up and walking. Eventually, we make it to big Walmart on expressway. It was so cold AND they didn't have anything so I could roll around with except......well, nothing. Then we spotted a lady and attacked her like an overweight pigeon. We got her off her chair and off we went. We spent about an hour shopping, came home and my mom and my sister whipped us (Emily & I) up some spam and potatoes. It was sooo good. Then my mom and sister went somewhere and then Emily went to her moms and I was at home all by myself. I took a shower and felt a little better. Then we went to the fair and I had to rent a wheelchair but no problem-o! We stayed for a while and ate some food, looked around, and stayed away from the carnival rides (bc of students). We were leaving at 9 and people were just coming in! I was like omg, go home people!! Lol.
Sunday was a lazy day at home. I didn't do anything at all.
Monday, I was asked by my student Austein if I wanted to go to the fair with him. So he worked out all the details. However, before that, I had a blood drawl deal and it was pretty clean. My hemoglobin was at a 8.4 and my white counts were up to a 0.9. :) I'll take it!! My platelets were at 11 so they gave me a unit of platelets. Thank goodness because those rides at the fair were brutal on your body.
So it's Tuesday now and I'm tired but I want to get out and do something. Hmmm,......idk yet but all I know is that I'm sick of laying here doing nothing. I'm sure my mom feels the same.
Well that's all for now! Xoxo
Kim
Thursday, September 13, 2012
Day 527: or so I thought.....
So of course, the doctors were like we're gonna watch you're counts and go from there. Booo!! But since they stopped all that iv antibiotics stuff my white counts went up!!
So after that I took my every other day shower and put on my new clothes and luckily right as I got in the shower the cleaning lady asked if I wanted to shower or anything....perfect! My mom was downstairs and shopping in the gift shop area. Meanwhile, I was in and out and quickly got dressed. And it was going to be a productive day.
Yesterday, I thought I was going home, today, and yeah I was excited to be home but for a while, but I somewhat knew they wouldn't let me go. Except, for a split second when I heard a nurse say, you got a new patient but i got a discharge? Now? Then i realized, it wasn't me......:( it Was this lady who is diagonal from me. When she was told, she was so upset bc she thought it would be Friday....and she was upset bc she needed her pain pills to sleep & since she only had 2.5 hours to get to lawton, they had to drive like maniacs. And of course 15 minutes later, they would go home and complain about everything to anyone who would listen.
So then my mom goes outside to put all her stuff away and she got distracted and was on the phone....then my sister came in and brought some food from a random burrito and pizza. Mmmmmm.....like the ones you crave at 3am at a convenience store. Yum! Anyways, so then we all were sitting here staring at each other and I said I was waiting on her....she said I was waiting on mom.....and my mom said, I'm drinking water. Lol. So off we went ( bc we didn't tell anyone where we were going) and we got to the car and we were off! I sat in the back and I got a coke with limes. My mom got food and my sister was driving us around. She then drove us down the new I-40 and then drove at the fair. We knew it was closed and all but we still went anyway. It was neat bc I'm gonna be there on Saturday/Sunday. So after about an hour we we're gone, and we made it back.
Okay.....my sister just got here with chilis!! I'm about to put these two bowls down!!
Have a good night!!
Kim
So after that I took my every other day shower and put on my new clothes and luckily right as I got in the shower the cleaning lady asked if I wanted to shower or anything....perfect! My mom was downstairs and shopping in the gift shop area. Meanwhile, I was in and out and quickly got dressed. And it was going to be a productive day.
Yesterday, I thought I was going home, today, and yeah I was excited to be home but for a while, but I somewhat knew they wouldn't let me go. Except, for a split second when I heard a nurse say, you got a new patient but i got a discharge? Now? Then i realized, it wasn't me......:( it Was this lady who is diagonal from me. When she was told, she was so upset bc she thought it would be Friday....and she was upset bc she needed her pain pills to sleep & since she only had 2.5 hours to get to lawton, they had to drive like maniacs. And of course 15 minutes later, they would go home and complain about everything to anyone who would listen.
So then my mom goes outside to put all her stuff away and she got distracted and was on the phone....then my sister came in and brought some food from a random burrito and pizza. Mmmmmm.....like the ones you crave at 3am at a convenience store. Yum! Anyways, so then we all were sitting here staring at each other and I said I was waiting on her....she said I was waiting on mom.....and my mom said, I'm drinking water. Lol. So off we went ( bc we didn't tell anyone where we were going) and we got to the car and we were off! I sat in the back and I got a coke with limes. My mom got food and my sister was driving us around. She then drove us down the new I-40 and then drove at the fair. We knew it was closed and all but we still went anyway. It was neat bc I'm gonna be there on Saturday/Sunday. So after about an hour we we're gone, and we made it back.
Okay.....my sister just got here with chilis!! I'm about to put these two bowls down!!
Have a good night!!
Kim
Wednesday, September 12, 2012
Day 526: One Step Back, Two Steps Forward....
SO Thursday, Friday, and Saturday, I felt awful. I don't even want to talk about Thursday and Friday or Saturday...lol, but here it goes. I was depressed and I was crying all day. That's really all I remember doing "those days." I remember starting some antidepressants and anti anxiety that day even though my mom said no, they went ahead and started them anyways but I only took a dose or two of them. oh well. lol. So anyways, Saturday came and I forced myself to shower mainly because my hair started dropping, and I started to feel it and I just wanted it all off my head. weird I know that sounds but when you lost your hair you think to yourself, wow, I can really do this and when hair does come back it really grows back. :) So I didn't think anything of this. it's crazy because in the first stages you think to yourself....my hair is never going to grow back. But it does. So eventually, you learn to live through wigs and cry a river together. Eventually, you like wearing wigs all the time! I love them....Anyways, I washed my hair and rubbed it until it was wet and I was feeling a bit uneasy about the product. So I called my mom into the shower and of course she did it for me because I was just tired in general. Eventually we got it all off and then I was like, here....and gave her a razor.....and said, go ahead and cut the rest off and she was like....OMG KIM!! lol. She eventually gave in and my head was bald by then. lol.
So then afterwards, she said, okay let me know when you want your underwear and your clothes. So I said, okay and kinda sat in there until then. I got up enough strength to ask for my underwear and eventually got up and walked out and asked for my clothes. I got some on and then later asked for my nurse to get me my hook up (to my heart). They started to adjust to my 205 hook up advantage. which, i eventually got. So then I was like alrighty, after a shower I want to be hooked up to my heart machine....of course right? no. But I eventually had to so I did and me and my mom went outside. It was super nice outside when we went out and I ate some soup (home-style chicken noodle) and some crackers (that my mom kept throwing at the birds) and sat down and eventually ate with me. We had fun, b/c I eventually laid down and just relaxed.
The next day, my sister eventually came over and after talking all morning and being fed by deb....around 2 we told our mom that shes the escape goat and planted it in her ear in front of the nurse. deb left and our plan to escape was perfect! so we kicked our mom out with the keys and off she went. me and my sister went together and even got into the car together. we decided to go home and was eventually like I wonder if this thing cuts off if your out of range? no one knew so, i was like, alrighty.....eventually it took us about 10 minutes to get my seat back in the car. we went ahead to the apartment and when we got there, it smelled like cat pee. awesome right? so we saw eins, said hi and eventually got a few mishaps. lol. we checked out our order and cracked up the whole time. eventually an hour went by and my mom started freaking out and we left and went to sonic then back to the hospital. we had her carry in our drinks too. lol, then after that she started talking about feeding birds bread, running after birds, and eventually capturing them??
monday was weird bc i was so tired/exhausted from everything the day before. i just laid in my bed and went to sleep. my sister came back later that night and brought us some chicken nuggets. i only usually only eat 20 but this time i only ate 5, :(
Tuesday i convinced myself to only get lunch from the quiznos down the street. not too exciting but i'll take it! nothing else happened that day either. except my sister eventually came straight over from drill, totally changed in the car and skipped right over seeing my mom, lol, who was at her house. lol. she eventually came back and had tacos and taco bell nacho sauce. then she got us up and we ate and watched love it or list it, property virgins, and the big bang theory. classic!
right now its wednesday and i get to go home tomorrow!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
if of course i dont run a temperature. :) so keep your toes crossed, fingers crossed, and pray i get to go to the state fair too!! yaayyy!!!
So then afterwards, she said, okay let me know when you want your underwear and your clothes. So I said, okay and kinda sat in there until then. I got up enough strength to ask for my underwear and eventually got up and walked out and asked for my clothes. I got some on and then later asked for my nurse to get me my hook up (to my heart). They started to adjust to my 205 hook up advantage. which, i eventually got. So then I was like alrighty, after a shower I want to be hooked up to my heart machine....of course right? no. But I eventually had to so I did and me and my mom went outside. It was super nice outside when we went out and I ate some soup (home-style chicken noodle) and some crackers (that my mom kept throwing at the birds) and sat down and eventually ate with me. We had fun, b/c I eventually laid down and just relaxed.
The next day, my sister eventually came over and after talking all morning and being fed by deb....around 2 we told our mom that shes the escape goat and planted it in her ear in front of the nurse. deb left and our plan to escape was perfect! so we kicked our mom out with the keys and off she went. me and my sister went together and even got into the car together. we decided to go home and was eventually like I wonder if this thing cuts off if your out of range? no one knew so, i was like, alrighty.....eventually it took us about 10 minutes to get my seat back in the car. we went ahead to the apartment and when we got there, it smelled like cat pee. awesome right? so we saw eins, said hi and eventually got a few mishaps. lol. we checked out our order and cracked up the whole time. eventually an hour went by and my mom started freaking out and we left and went to sonic then back to the hospital. we had her carry in our drinks too. lol, then after that she started talking about feeding birds bread, running after birds, and eventually capturing them??
monday was weird bc i was so tired/exhausted from everything the day before. i just laid in my bed and went to sleep. my sister came back later that night and brought us some chicken nuggets. i only usually only eat 20 but this time i only ate 5, :(
Tuesday i convinced myself to only get lunch from the quiznos down the street. not too exciting but i'll take it! nothing else happened that day either. except my sister eventually came straight over from drill, totally changed in the car and skipped right over seeing my mom, lol, who was at her house. lol. she eventually came back and had tacos and taco bell nacho sauce. then she got us up and we ate and watched love it or list it, property virgins, and the big bang theory. classic!
right now its wednesday and i get to go home tomorrow!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
if of course i dont run a temperature. :) so keep your toes crossed, fingers crossed, and pray i get to go to the state fair too!! yaayyy!!!
Wednesday, September 5, 2012
Day 519: Two Steps Forward...
well today i'm blogging so that is definitely a good sign. this morning I had people concerned because i didn't want to move, sit, walk, do nothing except lay. i was coughing more than usual so now they think fluid got back into my lungs and they think its bronchitis. doctors these days.
on top of all this since my bone marrow biopsy was a fail yesterday, i had another one scheduled today but this time it was down stairs in radiology with the actual professionals. real drugs and all. thats great and all except it was scheduled around 2 and they wouldn't let me eat or drink alllll day since midnight. it was awful. i was so hungry. and before they teased me by taking me down to the xray area to get my chest xray. i felt so weak it was crazy. it was hard standing against a board and when i had to turn to the side i had to hold onto a pole. it was so sad. as soon as i was finished i plopped down in my wheel chair and recovered breathing like i just ran a lap around the track. once i was being wheeled back i realized i just like being wheeled places just to get out of the room. i love my room and all but sometimes you just want out. as soon as i got back i needed help to my bed and i plooped down once again not caring about anything. i also starting coughing because my lunges were working and i'm still having some issues with that. awesome right?
so after laying in hunger and somewhat falling asleep transportation was back and ready to take me away. this time i thought...yesss! because i got to be taken by a bed with new sheets and a new pillow. it was just nice. so i crawled in underneath the fresh crispy sheets and enjoyed someone wheeling me around with a little breeze and occasionally the view out the window.
once we got to radiology, i was curtained off in a room and three nice nurses came in and started prepping me by giving me THREE bags of platelets to prepare for all the poking they were about to do. so as that finished, they wheeled me into the room and had me roll over into the next bed on my stomach and i was freeeezing. once they figured that out they gave me a heated blanket and it was heavenly. then they gave me stuff to calm me down and of course the lidocane...ugh. but as soon as i was numb i was fine. they seemed liked they got it but i was slowly dozing off.
next thing i knew i had to roll back over to my other bed and then they took me to recovery and was there for an hour and i slept. when i got back to my bed my nurse asked how i was feeling and i told her i wanted to go for a walk. so she offered to take me and it was nice. this time i wasn't winded and i walked further than i had. meaning my lungs must be getting stronger. thank goodness.
then i laid down, took a long nap, saw deb as she came through but then i was out. emily came too but i was asleep. then later i woke up and my mom encouraged me to walk again so i said, why not. i gotta get this swelling out of my feet and these lungs back to normal. well i'm tired and my sister and mom are here staying the night witth me so i'm gonna get off here.
i'm feeling better. keep the prayers coming...they're helping.
xxoxo
my prety shower curtain i made into a curtain
on top of all this since my bone marrow biopsy was a fail yesterday, i had another one scheduled today but this time it was down stairs in radiology with the actual professionals. real drugs and all. thats great and all except it was scheduled around 2 and they wouldn't let me eat or drink alllll day since midnight. it was awful. i was so hungry. and before they teased me by taking me down to the xray area to get my chest xray. i felt so weak it was crazy. it was hard standing against a board and when i had to turn to the side i had to hold onto a pole. it was so sad. as soon as i was finished i plopped down in my wheel chair and recovered breathing like i just ran a lap around the track. once i was being wheeled back i realized i just like being wheeled places just to get out of the room. i love my room and all but sometimes you just want out. as soon as i got back i needed help to my bed and i plooped down once again not caring about anything. i also starting coughing because my lunges were working and i'm still having some issues with that. awesome right?
so after laying in hunger and somewhat falling asleep transportation was back and ready to take me away. this time i thought...yesss! because i got to be taken by a bed with new sheets and a new pillow. it was just nice. so i crawled in underneath the fresh crispy sheets and enjoyed someone wheeling me around with a little breeze and occasionally the view out the window.
once we got to radiology, i was curtained off in a room and three nice nurses came in and started prepping me by giving me THREE bags of platelets to prepare for all the poking they were about to do. so as that finished, they wheeled me into the room and had me roll over into the next bed on my stomach and i was freeeezing. once they figured that out they gave me a heated blanket and it was heavenly. then they gave me stuff to calm me down and of course the lidocane...ugh. but as soon as i was numb i was fine. they seemed liked they got it but i was slowly dozing off.
next thing i knew i had to roll back over to my other bed and then they took me to recovery and was there for an hour and i slept. when i got back to my bed my nurse asked how i was feeling and i told her i wanted to go for a walk. so she offered to take me and it was nice. this time i wasn't winded and i walked further than i had. meaning my lungs must be getting stronger. thank goodness.
then i laid down, took a long nap, saw deb as she came through but then i was out. emily came too but i was asleep. then later i woke up and my mom encouraged me to walk again so i said, why not. i gotta get this swelling out of my feet and these lungs back to normal. well i'm tired and my sister and mom are here staying the night witth me so i'm gonna get off here.
i'm feeling better. keep the prayers coming...they're helping.
xxoxo
pretty poster on my wall
night shot of the bling curtain
kimTuesday, September 4, 2012
Day 518: where has time went
dear fellow readers, it's been 8 whole days that I've been in here. After my last dose of chemo, things starting rolling down hill and my pancreas was full on attacked. my assumption is that it was the chemo and all the eating i was doing prior to that (breakfast, lunch, and dinner, two =o nights in a row.) comparing that to only eating soup all All a day, once a day. well over night my body took a toll for the best. i spend the night taking morphine curled up in a ball getting pain med after morphine all day. once people actually acted like a real patient advcator, mar-lax, and other strong drugs were given. this was about two days i sorta remember seeing visitors but couldn't say
**This is Kimberly's Mother, Kimberly ask me to finish her blogging. They just tried to get another biopsy today, will let you known later on this. She is sleeping now.
Just to let everyone know that she fight the infections (Pneumonia), she is on two different type of antibiotic it has been tough for her and she feels bad that she has been answer any of message, phone calls, and keeping up with her blog. She needs her rest as much as she can, she does miss everyone, she wants thank you all, for your support, and pray.
Today is one month from her Birthday!!!
I here with her 24 hour day.
Have a good day, and Thank you, Caroline (Mother)
oklay this is kim and that was the most FAILED bone barrow biopsy eveyry . the dude was new and he numbed me too much in the wrong places and he couldn't e=get anhthing. so instead they;re taking me down to radiology to have it done instead.
so one of the 8 nights, i wanna say saturday or or something. in the middle of the night my pulse ox, blood pressure and everything dropped and i went into cardio arrest in my i dont remember but all i know is that when i woke up. there was a zillion doctors around me and one said too much fluid in my lungs. great. so now i have to wear a permanent pulseoximeter. so days went by of being uncomfortable and here i am. im still fighting but believe me, its hard.
once again, im sorry about not responding....im doing my best.
all my love,
kim
**This is Kimberly's Mother, Kimberly ask me to finish her blogging. They just tried to get another biopsy today, will let you known later on this. She is sleeping now.
Just to let everyone know that she fight the infections (Pneumonia), she is on two different type of antibiotic it has been tough for her and she feels bad that she has been answer any of message, phone calls, and keeping up with her blog. She needs her rest as much as she can, she does miss everyone, she wants thank you all, for your support, and pray.
Today is one month from her Birthday!!!
I here with her 24 hour day.
Have a good day, and Thank you, Caroline (Mother)
oklay this is kim and that was the most FAILED bone barrow biopsy eveyry . the dude was new and he numbed me too much in the wrong places and he couldn't e=get anhthing. so instead they;re taking me down to radiology to have it done instead.
so one of the 8 nights, i wanna say saturday or or something. in the middle of the night my pulse ox, blood pressure and everything dropped and i went into cardio arrest in my i dont remember but all i know is that when i woke up. there was a zillion doctors around me and one said too much fluid in my lungs. great. so now i have to wear a permanent pulseoximeter. so days went by of being uncomfortable and here i am. im still fighting but believe me, its hard.
once again, im sorry about not responding....im doing my best.
all my love,
kim
Monday, August 27, 2012
Day 512: We may encounter many defeats but we must not be defeated...
Well it's back to Monday and I've been in here for 17 days. This reminds me too much of my mercy days when I was in for like 25 days or something. Except Mercy was so much "cushier," as I always bring that up everytime I write about the two. But I'm growing to tolerate it.
This morning was yet another rough night. I don't remember my blog from the night before and I hate going back and reading them the night before because there are so many mistakes that I've made that I want to change. But I don't. I want people to experience the chemo-ness in full. Short term memory and all....because chemo brain IS real. I forget things I'm talking about, and my mind is just scattered in general (if you know me at all) that when I'm on medication, it's 40x's worse. But God loves me anyway. Today it hasn't been too bad but now I find myself falling asleep at the drop of the hat. I watch a lot less TV so what else do I do than? really, I couldn't answer that question. This calls for an experiment....to be called.....A day in the life of Kim Begay. I'm going to sit with paper right beside me and record all that I do and what gets done to me (vitals, medication, converation...) Etc. This will start at midnight.....if I remember, which I probably will because it seems as though I have an internal clock that wakes me up then for no particular reason.
I think I was going to do this in my past blog....but since my sleep has probably been cut because old people wake up early an all, I think I can manage.
Anyways, back to this morning, it was terrible. My nurse didn't have very good bedside manners and it was really like a person collecting his/her paycheck. Sure I understand it's the night shift, but you chose it and had to accept it. He was just careless in everything he did and never gave off any type of remorse for waking me up, even though I tend to wake up pretty easy and unless I'm dealing with extreme pain or nausea, I even try to be pleasant. It reminded me of teachers who do the same thing, collect the pay check, abuse the system, and really, it's the kids who are suffering. I don't know how else to put that out there without putting him on blast because that really isn't what this blog is about. Its about the positives and the unexpectedness one or familly's can go though relating to the cancer experience. Anyways, just know I had a terrible nurse, who shall remain nameless.
Other sub sequential events followed my awful morning that I care not to share on here because it will lead to an emotional break down (that is quite normal) for patients to have. I'd rather not relive those moments, I just pray and hope that no one has to experience it. I'll leave it at that. Don't ask me privately, because the only response will be "huh?"
So after an emotional breakdown early this morning, I fell asleep hard and slept until around 10am and debated on whether or not to call down to brunch but then realized that my stomach is getting mainly upset when I fill it with products like dairy (go figure) because it's hard to break down (who would've thunk) so my morning cereal that I've been eating everyday, as well as my toasted bagel with creme cheese wasn't exactly the best thing I could've been putting in my body at the beginning of the day. But you learn as you go and I definitely did. Right now, I'm on a chicken noodle soup diet because that seems to be getting the job done and anytime I want it, I have crackers on deck and even a Shasta Twist to go with it just in case. My carbonation craving is back (the sensation that you get as soon as you take your first drink of a newly opened bottle or can) so forget yellow gatorade (that's chemo drink b/c of electrolytes and sugar), I'm all about the CANS of coke, sprite, cherry coke, Lemon-Lime coke perhaps? don't rush up here with a 24 pack of little coke, just a mini six pack will do because I'll only drink the first half of it. LOL. WOW, I just read that again and NO i'm not saying if you visit you have to bring one....but many of you ask if I want something. And that's my want. LOL. I'm so picky.
Well it's 9pm and every night at 9 I watch King of Queens on TV (my only show for the day) and I need to get up and make this soup. Have a good night....No word on release yet, but like I said, the doctor is being cautious and I ran a fever last night so blood cultures will be done in the morning! :)
Good night,
Love you all.
Kim
This morning was yet another rough night. I don't remember my blog from the night before and I hate going back and reading them the night before because there are so many mistakes that I've made that I want to change. But I don't. I want people to experience the chemo-ness in full. Short term memory and all....because chemo brain IS real. I forget things I'm talking about, and my mind is just scattered in general (if you know me at all) that when I'm on medication, it's 40x's worse. But God loves me anyway. Today it hasn't been too bad but now I find myself falling asleep at the drop of the hat. I watch a lot less TV so what else do I do than? really, I couldn't answer that question. This calls for an experiment....to be called.....A day in the life of Kim Begay. I'm going to sit with paper right beside me and record all that I do and what gets done to me (vitals, medication, converation...) Etc. This will start at midnight.....if I remember, which I probably will because it seems as though I have an internal clock that wakes me up then for no particular reason.
I think I was going to do this in my past blog....but since my sleep has probably been cut because old people wake up early an all, I think I can manage.
Anyways, back to this morning, it was terrible. My nurse didn't have very good bedside manners and it was really like a person collecting his/her paycheck. Sure I understand it's the night shift, but you chose it and had to accept it. He was just careless in everything he did and never gave off any type of remorse for waking me up, even though I tend to wake up pretty easy and unless I'm dealing with extreme pain or nausea, I even try to be pleasant. It reminded me of teachers who do the same thing, collect the pay check, abuse the system, and really, it's the kids who are suffering. I don't know how else to put that out there without putting him on blast because that really isn't what this blog is about. Its about the positives and the unexpectedness one or familly's can go though relating to the cancer experience. Anyways, just know I had a terrible nurse, who shall remain nameless.
Other sub sequential events followed my awful morning that I care not to share on here because it will lead to an emotional break down (that is quite normal) for patients to have. I'd rather not relive those moments, I just pray and hope that no one has to experience it. I'll leave it at that. Don't ask me privately, because the only response will be "huh?"
So after an emotional breakdown early this morning, I fell asleep hard and slept until around 10am and debated on whether or not to call down to brunch but then realized that my stomach is getting mainly upset when I fill it with products like dairy (go figure) because it's hard to break down (who would've thunk) so my morning cereal that I've been eating everyday, as well as my toasted bagel with creme cheese wasn't exactly the best thing I could've been putting in my body at the beginning of the day. But you learn as you go and I definitely did. Right now, I'm on a chicken noodle soup diet because that seems to be getting the job done and anytime I want it, I have crackers on deck and even a Shasta Twist to go with it just in case. My carbonation craving is back (the sensation that you get as soon as you take your first drink of a newly opened bottle or can) so forget yellow gatorade (that's chemo drink b/c of electrolytes and sugar), I'm all about the CANS of coke, sprite, cherry coke, Lemon-Lime coke perhaps? don't rush up here with a 24 pack of little coke, just a mini six pack will do because I'll only drink the first half of it. LOL. WOW, I just read that again and NO i'm not saying if you visit you have to bring one....but many of you ask if I want something. And that's my want. LOL. I'm so picky.
Well it's 9pm and every night at 9 I watch King of Queens on TV (my only show for the day) and I need to get up and make this soup. Have a good night....No word on release yet, but like I said, the doctor is being cautious and I ran a fever last night so blood cultures will be done in the morning! :)
Good night,
Love you all.
Kim
Sunday, August 26, 2012
Day 511: Everybody is sleeping...
I think the whole OKC metro is sleeping. myself influded. i've been waking up to bizarre dreams, so bizarre that If I don't automatcally tell someone I'll forget them.
Today I got three surprises in the mail, one, a card from a fellow HS soccer buddy explaining how bad she feels seeing as though I have to go through this AGAIN. :( Another was from her Mother, who again, expressed her deepest regret of my relapse. Someimes I need tese constant reminders to remind myself that I'm not superhuman, no one is. Were just people who have chosen to take a different route in life. It will get us to the same destinations, people will just have to endure me.
And lastly, but never leastly, a sweet friend of mine. sent a me a "care ackage" that I received and it was WONDERFUL. I had all the miscellaneous thing I may have not. at my finger tips. Some may or may have not doctor approved but like said before, YOLO! lol. I got a new set of NEW set of bed sheets....which is perfect because I spilled all my late night chicken noodle soup . I had to use ugly white sheets for the night. :) She also got me a new fuzzy zebra throw pillow (for the cold headed nights, and a fuzzy blanket they Ine been napping all day in it and it is perfect!! Thank you Geri! :) There were a lot more knick knacks but I chose to keep these as more gifts to myself! To give my elf a surprise everyday. :)
on the medical side, regular finger pricks are taken; I've now had to "scares" but I think it was the quality of snow.....HAHAHAHAHAHA. See this is just went through my mind As I wrote, I was thinking about learning to how snow board. I was going to erase it BUT once I realized what was going go...I thought I'd throw you off. LOL. it's that bizzarre? So this blog could be worse.
i
Anways, back to medical news, I received one unit of blood KEEP DONATING) and ONE bag of platelets...fairly early this evening. this Sunday shift has their stuff together.
Before transfusion my platelets were at an 8...White Blood Cell (0.1).....Red Blood Cell (3.6) and platelets were an 8.
so just make sure you're lean and sick ree. My potassium also slipped a little below normal so they're giving giving me a potassium IV help boost me up. As always, the usual's are low and "monitoring: I must do.
Today I got three surprises in the mail, one, a card from a fellow HS soccer buddy explaining how bad she feels seeing as though I have to go through this AGAIN. :( Another was from her Mother, who again, expressed her deepest regret of my relapse. Someimes I need tese constant reminders to remind myself that I'm not superhuman, no one is. Were just people who have chosen to take a different route in life. It will get us to the same destinations, people will just have to endure me.
And lastly, but never leastly, a sweet friend of mine. sent a me a "care ackage" that I received and it was WONDERFUL. I had all the miscellaneous thing I may have not. at my finger tips. Some may or may have not doctor approved but like said before, YOLO! lol. I got a new set of NEW set of bed sheets....which is perfect because I spilled all my late night chicken noodle soup . I had to use ugly white sheets for the night. :) She also got me a new fuzzy zebra throw pillow (for the cold headed nights, and a fuzzy blanket they Ine been napping all day in it and it is perfect!! Thank you Geri! :) There were a lot more knick knacks but I chose to keep these as more gifts to myself! To give my elf a surprise everyday. :)
on the medical side, regular finger pricks are taken; I've now had to "scares" but I think it was the quality of snow.....HAHAHAHAHAHA. See this is just went through my mind As I wrote, I was thinking about learning to how snow board. I was going to erase it BUT once I realized what was going go...I thought I'd throw you off. LOL. it's that bizzarre? So this blog could be worse.
i
Anways, back to medical news, I received one unit of blood KEEP DONATING) and ONE bag of platelets...fairly early this evening. this Sunday shift has their stuff together.
Before transfusion my platelets were at an 8...White Blood Cell (0.1).....Red Blood Cell (3.6) and platelets were an 8.
so just make sure you're lean and sick ree. My potassium also slipped a little below normal so they're giving giving me a potassium IV help boost me up. As always, the usual's are low and "monitoring: I must do.
Saturday, August 25, 2012
Day 511: What hours?
I totally just woke up to my nurse, Fe, pricking my finger, taking my vitals and giving me medications. Not weird at all....but I seriously thought it was 3am!! These past couple days I didn't realized how much i have been relying on morphine to get me through my pain that I might be addiced to it in some way. WHAT?! Even last night when Emily came down to visit with me, I was dozing on and off and today while Sarah waited for nurses to come, I was in a completely relaxed state of mind Constantine asking myself...did you just really say that? lol, I"m sure I sounded silly.
Oh the side effects.
So last night after the WORST day of my life, I managed to get myself up and be transportated to CT scan where they did a CT of my pancreas. When I asked the morning doctors about it, most of them looked dum founded and the typical "i'm not sure yet" answer of "We'll continue to monitor your levels" came about and I"m back to square one. I had a pretty good bowel movement (considering that I haven't eaten in in the past 48 hours and that was a relief. I think it was all the SERILE water I had to drink right before the CT.
Today was once again an overall relaxing day. I din't really want visitors becase I just wanted to sleep but two ended up coming anyway, and I'm so happy they did.
I noticed that my hair has been coming out a LOT easier so today I told myself....Self, its a goodday to be bald. And I did it. Deontre (an old student of mine) came up and had no idea what hew as in for. Sarah Mae came up too and I don't think she expected it...I mean, it's not everyday someone says.....hey, shave my head. And today I just felt ready. I didn't have once ounce of emotion....almost it was like....okay you might as well get it done now so your hair can at least be fixed during bedride report or doctors rounds. I may get some reaction tomorrow. GOOD.''So for those of you who are sending me the typical, you look becautiful with or without your hair, it always grows back, it'll be back before you know it, people can't even tell if it's a wig....save it. It's soft of annoying. Now the first time....WHOLE different story. (check out that emotional whirlwind post.)
Well it's 9:18pm and my nurse heated me up some SOUP so I'm gonna go enjoy that and then SLEEP. I can't seem to find it when I need it. :)
xoxo
kim
Oh the side effects.
So last night after the WORST day of my life, I managed to get myself up and be transportated to CT scan where they did a CT of my pancreas. When I asked the morning doctors about it, most of them looked dum founded and the typical "i'm not sure yet" answer of "We'll continue to monitor your levels" came about and I"m back to square one. I had a pretty good bowel movement (considering that I haven't eaten in in the past 48 hours and that was a relief. I think it was all the SERILE water I had to drink right before the CT.
Today was once again an overall relaxing day. I din't really want visitors becase I just wanted to sleep but two ended up coming anyway, and I'm so happy they did.
I noticed that my hair has been coming out a LOT easier so today I told myself....Self, its a goodday to be bald. And I did it. Deontre (an old student of mine) came up and had no idea what hew as in for. Sarah Mae came up too and I don't think she expected it...I mean, it's not everyday someone says.....hey, shave my head. And today I just felt ready. I didn't have once ounce of emotion....almost it was like....okay you might as well get it done now so your hair can at least be fixed during bedride report or doctors rounds. I may get some reaction tomorrow. GOOD.''So for those of you who are sending me the typical, you look becautiful with or without your hair, it always grows back, it'll be back before you know it, people can't even tell if it's a wig....save it. It's soft of annoying. Now the first time....WHOLE different story. (check out that emotional whirlwind post.)
Well it's 9:18pm and my nurse heated me up some SOUP so I'm gonna go enjoy that and then SLEEP. I can't seem to find it when I need it. :)
xoxo
kim
Friday, August 24, 2012
Day 510: 24+ hours
I'm so sorry to have kept everyone so worried. I have had the absolute MOST MISERABLE 24+ hours.
After the Chemotherapy (day 9) I started to feel just sick to my stomach. After visitors left, I had enough energy for my bootleg pedicure and just as soon as I finished that, I laid down to go to sleep because my stomach was hurting pretty bad. I could pinpoint the exact direction and did nothing but complain to the night nurse.
It felt as thought I had to use the restroom every 30 seconds. I had to stay hunched over at all times and I couldn't even lay down in any way possible to find a 10% comfortable position. So the whole night, I laid as still as possible and took my ambien. I got an OKAY amount of sleep but then, the morning happened.As soon as I woke up my pancreas was all sorts of swollen....or so the doctors say. I just knew I had to use the restroom. I painfully made my way to the restroom and noting. I felt a little up for eating so I ordered some cereal (bad idea) and as soon as I finished that, I felt like I got immediate food poisoning. I wasn't sweating or anything just in a WHOLE LOT OF EXCRUCIATING pain in my stomach (right above the belly button).
So then after complaining endlessly and crying, the nurses started giving me morphine to off set the pain every 2 hours. But morphine is almost an instant action type thing and after about an hour and a half, the pain returned. On top of all of tis, I was still hooked up to fluids and having to make it up and about to go to the restroom.
So yesterday my day went like this....woke up...morphine injection...lay down...get "comfortable"....get up....hunch/walk to the restroom....more morphine. I also have the theory that all the insulin injections I was getting the past two days had something to do with it. Or just the bag of chemo was really that harsh.
So I'm sorry if yesterday you tried to contact me, I was so beyond out of it, if you did get a reply, I was probably high from all the pain killers. I didn't even turn on the TV, radio, anything. I also didn't eat at all nor pretty much drink anything for that matter. On a brighter note, my glucose levels were WAYYY down. THe nurses all day kept trying to get me to at least eat soup but the idea of food in my stomach was TOO MUCH.
So then last night, the same thing happened again. It was an overall uncomfortable mess and I found myself waking up and hunching in a ball sitting indian style in my bed. Luckily I had great nurses who kept onto those doctors about my pain level We got to the point that EVERY 2 hours my pain was rated 9 or 10 out of 10 and nothing would help except morphine.
So today when I woke up, I felt the same, my stomach hurts a little less when I move positions and since my doctors have figured out that when I say I'm in pain....i must mean I'm in pain....they're sending me down to get a CT scan and possibly an ultrasound to check things out. Okay well, I have been sitting for the last 15 minutes and I'm starting to get sick again.
I'm gonna lie here until transport comes to get me because that itself with take a lot of energy. :( :(
Please pray for me. I'll try to write more later.
kim
After the Chemotherapy (day 9) I started to feel just sick to my stomach. After visitors left, I had enough energy for my bootleg pedicure and just as soon as I finished that, I laid down to go to sleep because my stomach was hurting pretty bad. I could pinpoint the exact direction and did nothing but complain to the night nurse.
It felt as thought I had to use the restroom every 30 seconds. I had to stay hunched over at all times and I couldn't even lay down in any way possible to find a 10% comfortable position. So the whole night, I laid as still as possible and took my ambien. I got an OKAY amount of sleep but then, the morning happened.As soon as I woke up my pancreas was all sorts of swollen....or so the doctors say. I just knew I had to use the restroom. I painfully made my way to the restroom and noting. I felt a little up for eating so I ordered some cereal (bad idea) and as soon as I finished that, I felt like I got immediate food poisoning. I wasn't sweating or anything just in a WHOLE LOT OF EXCRUCIATING pain in my stomach (right above the belly button).
So then after complaining endlessly and crying, the nurses started giving me morphine to off set the pain every 2 hours. But morphine is almost an instant action type thing and after about an hour and a half, the pain returned. On top of all of tis, I was still hooked up to fluids and having to make it up and about to go to the restroom.
So yesterday my day went like this....woke up...morphine injection...lay down...get "comfortable"....get up....hunch/walk to the restroom....more morphine. I also have the theory that all the insulin injections I was getting the past two days had something to do with it. Or just the bag of chemo was really that harsh.
So I'm sorry if yesterday you tried to contact me, I was so beyond out of it, if you did get a reply, I was probably high from all the pain killers. I didn't even turn on the TV, radio, anything. I also didn't eat at all nor pretty much drink anything for that matter. On a brighter note, my glucose levels were WAYYY down. THe nurses all day kept trying to get me to at least eat soup but the idea of food in my stomach was TOO MUCH.
So then last night, the same thing happened again. It was an overall uncomfortable mess and I found myself waking up and hunching in a ball sitting indian style in my bed. Luckily I had great nurses who kept onto those doctors about my pain level We got to the point that EVERY 2 hours my pain was rated 9 or 10 out of 10 and nothing would help except morphine.
So today when I woke up, I felt the same, my stomach hurts a little less when I move positions and since my doctors have figured out that when I say I'm in pain....i must mean I'm in pain....they're sending me down to get a CT scan and possibly an ultrasound to check things out. Okay well, I have been sitting for the last 15 minutes and I'm starting to get sick again.
I'm gonna lie here until transport comes to get me because that itself with take a lot of energy. :( :(
Please pray for me. I'll try to write more later.
kim
Wednesday, August 22, 2012
Day 508: Good thing I can type without looking...
Today was an OVERALL GREAT DAY. It was SHOWER day and like I said before....shower days are like heaven. I feel clean and I get new sheets on my bed and I even manage to get enough energy to pick up after myself. I got up relatively early...9 am...and ordered once again a FULL breakfast and between doctors managed to relax and catch a few zzzz's.
The main attending oncologist again shut my head down with the idea of not going home because he's concerned about my counts. But the seed has been planted that I'm READY to go home and I promise to be good and be hygienic like I know I can be. Everyone is rooting for me because they all know it's absolute torture being here and laying around all day getting fluids (saline) like a boss. Not exactly cool. All it makes me do is use the restroom every hour almost on the hour and it's annoying....especially if I just want to sleep.
Today after my long shower, I got my day 9 of chemo (even though i'm convinced it is only day 8) around 3 or 4 because it seemed to get a little busy around here. My friend Tara came with LUNCH and it was seriously meant to be because I had just ordered nasty chicken breast and baked potato for lunch (still on potato kick) and then Tara was like...what are you doing? Are you hungry? So we got some SUBWAY and when she got here the chemo started. It went over 2 hours and it was just a little tiny bag. meaning...it was more harsh. I got pre-medicated about 30 minutes before with benadryl through an IV (my absolute favorite thing to get because you get all warm and fuzzy inside and just have an opportunity to RELAX completely.) and some steroids so my schedule was so messed up because after the relaxation....I got HUNGRY and ate all my food.
Tara was here for a while then I got two more visitors from my college days, Kyndall and Brent!! They brought me some goodies (snacks) and some SHEETS!! They're so pretty. All three are nurses so it was sorta funny whenever my IV would go off....they were all on alert and they sat and talked nursing stuff and compared places and how lax this place is. lol.
As they were here visiting an old student of mine (2nd year student) Deontre came!! I just love when old students come because it makes me seem like I left a good impact and they care more than outside the classroom. He was doing good and we rambled over his plans for the future.
During the time, they gave me my FIRST finger prick and talk about OUCH. I've been through lots of grueling procedures since all this cancer stuff came about but I was SOOO nervous about getting a glucose test. I freaked out and may or may not have screamed when I got it. My friends laughed at me but I think all those glucose commercials on TV freaked me out even more about the pain. My blood sugar was up in the 300's so they started insulin shots again...I got one in the stomach to bring it down and it just felt weird. Not necessarily because it was a shot in the stomach (I've had PLENTY before) but just the fact that it was insulin that made me nervous. I got another one at 9 to see if it went down and this time it was around 250 or something so they once again gave me another.
After Kyndall, Brent, and Tara left Deontre stuck around and two Tafties (school where I work at) came to visit and brought me a McNellie burger and it was once again....WONDERFUL. :) They stayed a little while to talk, collect my laundry, and dropped off my "bootleg" pedicure stuff.
Then Deontre went home and I got started on my feet. I soaked them in my room, filed, cut, and did the whole pedicure thing myself. Everyone checks feet around here and since I'm diabetic for a little while....feet are important right??? That's what Forrest Gump taught me. LOL.
The ladies who came in were like...uhhh Kim, what are you doing? Then I had to explain to them it's been so long since i've got a GOOD manicure/pedicure and they instantly understood. So until I get out of here....this will have to do. My feet feel 100x's better and tomorrow I'll paint them a little.
The chemo tonight made my stomach pretty upset (which may be a combination of eating so MUCH these past two days, compared to the first 7 days) so I had to lay down curled in a ball for a while. My stomach still kinda hurts but it's almost ambien time so I'll tough it out for now. I got Nausea injection to help but it has yet to kick in. I hope this isn't any indication for my day tomorrow....it's going to be rough if it is.
Well, other than that, I'm stocked up on chemo craving snacks and I'm ready to go to sleep. Oh my weight is down 14 lbs since I got here but they said I actually gained 3 lbs back the past 2 days since my appetite has been good. No where near how skinny I was last year but most of my liver and spleen function has returned and my food isn't just sitting like it was when I first got admitted. Thank you jesus!!
Okay well, I'm about to call up this nurse, crawl under my blankets, put on a new eye mask I got today and enjoy my much needed night.
I'm so tired (probably because lack of blood) and just had an overall big day with visitors. But I'm thankful for all of them because it's days like this that get me through the worst days that are ahead. I'm so glad I can reflect on this later and smile about a good day like this.
Thanks for the prayers, good thoughts and all that jazz from all of you because without that, life would be a LOT harder. I love you all.....good night!!
xoxo
KIm
The main attending oncologist again shut my head down with the idea of not going home because he's concerned about my counts. But the seed has been planted that I'm READY to go home and I promise to be good and be hygienic like I know I can be. Everyone is rooting for me because they all know it's absolute torture being here and laying around all day getting fluids (saline) like a boss. Not exactly cool. All it makes me do is use the restroom every hour almost on the hour and it's annoying....especially if I just want to sleep.
Today after my long shower, I got my day 9 of chemo (even though i'm convinced it is only day 8) around 3 or 4 because it seemed to get a little busy around here. My friend Tara came with LUNCH and it was seriously meant to be because I had just ordered nasty chicken breast and baked potato for lunch (still on potato kick) and then Tara was like...what are you doing? Are you hungry? So we got some SUBWAY and when she got here the chemo started. It went over 2 hours and it was just a little tiny bag. meaning...it was more harsh. I got pre-medicated about 30 minutes before with benadryl through an IV (my absolute favorite thing to get because you get all warm and fuzzy inside and just have an opportunity to RELAX completely.) and some steroids so my schedule was so messed up because after the relaxation....I got HUNGRY and ate all my food.
Tara was here for a while then I got two more visitors from my college days, Kyndall and Brent!! They brought me some goodies (snacks) and some SHEETS!! They're so pretty. All three are nurses so it was sorta funny whenever my IV would go off....they were all on alert and they sat and talked nursing stuff and compared places and how lax this place is. lol.
As they were here visiting an old student of mine (2nd year student) Deontre came!! I just love when old students come because it makes me seem like I left a good impact and they care more than outside the classroom. He was doing good and we rambled over his plans for the future.
During the time, they gave me my FIRST finger prick and talk about OUCH. I've been through lots of grueling procedures since all this cancer stuff came about but I was SOOO nervous about getting a glucose test. I freaked out and may or may not have screamed when I got it. My friends laughed at me but I think all those glucose commercials on TV freaked me out even more about the pain. My blood sugar was up in the 300's so they started insulin shots again...I got one in the stomach to bring it down and it just felt weird. Not necessarily because it was a shot in the stomach (I've had PLENTY before) but just the fact that it was insulin that made me nervous. I got another one at 9 to see if it went down and this time it was around 250 or something so they once again gave me another.
After Kyndall, Brent, and Tara left Deontre stuck around and two Tafties (school where I work at) came to visit and brought me a McNellie burger and it was once again....WONDERFUL. :) They stayed a little while to talk, collect my laundry, and dropped off my "bootleg" pedicure stuff.
Then Deontre went home and I got started on my feet. I soaked them in my room, filed, cut, and did the whole pedicure thing myself. Everyone checks feet around here and since I'm diabetic for a little while....feet are important right??? That's what Forrest Gump taught me. LOL.
The ladies who came in were like...uhhh Kim, what are you doing? Then I had to explain to them it's been so long since i've got a GOOD manicure/pedicure and they instantly understood. So until I get out of here....this will have to do. My feet feel 100x's better and tomorrow I'll paint them a little.
The chemo tonight made my stomach pretty upset (which may be a combination of eating so MUCH these past two days, compared to the first 7 days) so I had to lay down curled in a ball for a while. My stomach still kinda hurts but it's almost ambien time so I'll tough it out for now. I got Nausea injection to help but it has yet to kick in. I hope this isn't any indication for my day tomorrow....it's going to be rough if it is.
Well, other than that, I'm stocked up on chemo craving snacks and I'm ready to go to sleep. Oh my weight is down 14 lbs since I got here but they said I actually gained 3 lbs back the past 2 days since my appetite has been good. No where near how skinny I was last year but most of my liver and spleen function has returned and my food isn't just sitting like it was when I first got admitted. Thank you jesus!!
Okay well, I'm about to call up this nurse, crawl under my blankets, put on a new eye mask I got today and enjoy my much needed night.
I'm so tired (probably because lack of blood) and just had an overall big day with visitors. But I'm thankful for all of them because it's days like this that get me through the worst days that are ahead. I'm so glad I can reflect on this later and smile about a good day like this.
Thanks for the prayers, good thoughts and all that jazz from all of you because without that, life would be a LOT harder. I love you all.....good night!!
xoxo
KIm
Tuesday, August 21, 2012
Day 507: Familiar Nights...
Well it's 11pm and I'm so ready to go to sleep. Except...they are just now giving me my blood. They just finished my platelet transfusion and I already feel my blood clotting! (not really but it's the idea that counts!) A nurse came in who remembers me and she said I actually look healthier and still have color to me so I'm not as pale as I think I am.
Today has been an overall good day. I had rather good company, starting off early around 10, Kim, a visitor from a local church that has heard all my stories through the wonderful Ray family. She came to visit and say hi and just check on me and it feels good to know people are doing what they do and looking after me.
Then, my doctors finally graced my presence as I was eating and their response was....well looks like someone got their appetite back. lol. No shame here.
The new attending doctor said he doesn't want to release me just yet because he's afraid I'll need more transfusions. So the plan is to get antsy enough and bother him enough to get him to let me go home for a few days....I'll work on this scheme later.
After the normal rounds, I got myself comfortable and fell asleep until about lunch time and had a lunch time visitor, JESSICA, and she brought me baked potato soup (my most recent craving) and it was nice to see her. It was a quick sweet visit but much needed. :)
Then, I put myself into a food coma (again) and passed out until doctors, nurses, techs kept coming through and I woke up to the random neighborhood chase going through the neighborhoods I run at when I run outside....scary. But it was midday and no one was harmed, it was just cool seeing the houses I run by on TV. lol.
Then later, the Ray's came by again to say hi and we talked about the latest hospital happenings and caught up and from there my sister came by to pick up some money so she could get me some skin care regimen stuff going since the Chemotherapy just aggravates my skin, I figured I'd start early and test some products before i actually go through all this again. Then my other friend, Ashley, came by with some dinner (YUMMY) and we sat and talked more. I just love visitors because they keep me in touch with just life outside the hospital because hospital talk can be lame and there is only so many interesting stories I can tell. lol. And I like to live vicariously though people while I'm down for the count.....
My sister stayed for a while but she just left. Now I'm ready for this blood transfusion and this ambien so I can SLEEP tonight. It's cold in my room, just how I like it before i go to sleep. :)
Well tomorrow should be good because I won't be so dang tired from my lack of blood and it's shower day!! it's the little things in life that I get excited over....and that's okay.
I'm off of here, love you all.
xoxo
Kim
Today has been an overall good day. I had rather good company, starting off early around 10, Kim, a visitor from a local church that has heard all my stories through the wonderful Ray family. She came to visit and say hi and just check on me and it feels good to know people are doing what they do and looking after me.
Then, my doctors finally graced my presence as I was eating and their response was....well looks like someone got their appetite back. lol. No shame here.
The new attending doctor said he doesn't want to release me just yet because he's afraid I'll need more transfusions. So the plan is to get antsy enough and bother him enough to get him to let me go home for a few days....I'll work on this scheme later.
After the normal rounds, I got myself comfortable and fell asleep until about lunch time and had a lunch time visitor, JESSICA, and she brought me baked potato soup (my most recent craving) and it was nice to see her. It was a quick sweet visit but much needed. :)
Then, I put myself into a food coma (again) and passed out until doctors, nurses, techs kept coming through and I woke up to the random neighborhood chase going through the neighborhoods I run at when I run outside....scary. But it was midday and no one was harmed, it was just cool seeing the houses I run by on TV. lol.
Then later, the Ray's came by again to say hi and we talked about the latest hospital happenings and caught up and from there my sister came by to pick up some money so she could get me some skin care regimen stuff going since the Chemotherapy just aggravates my skin, I figured I'd start early and test some products before i actually go through all this again. Then my other friend, Ashley, came by with some dinner (YUMMY) and we sat and talked more. I just love visitors because they keep me in touch with just life outside the hospital because hospital talk can be lame and there is only so many interesting stories I can tell. lol. And I like to live vicariously though people while I'm down for the count.....
My sister stayed for a while but she just left. Now I'm ready for this blood transfusion and this ambien so I can SLEEP tonight. It's cold in my room, just how I like it before i go to sleep. :)
Well tomorrow should be good because I won't be so dang tired from my lack of blood and it's shower day!! it's the little things in life that I get excited over....and that's okay.
I'm off of here, love you all.
xoxo
Kim
Day 507: I've had better nights....
So I got NO SLEEP last night what so ever. I tried to do it without my ambien pills and yup, impossible. It seemed like the tech and nurses were on unrelated schedules and I swear every 2 hours they came in to give ice, give meds, take vitals, say hi, chit chat....everything and anything in between. But it is their job. Also the wax guy who was doing the floors decided to start at like 9pm and his shoulder kept hitting my light (as well as other not so gracious patients) on. The lady next door got a hold of him pretty quick and yelled at him for a while for the whole floor so I didn't see a need to say anything.
So today I predict will be a lazy day...seeing as though i'm awake by 9am and not one doctor has came by to see me - word spreads quickly I'm not a morning person, lol. I just ordered breakfast since I've been thinking about it since 6:30am.
Today I ordered an actual breakfast so we'll see how everything tastes. I told the lady on the phone....okay it might be a big random order, IDK where my taste buds are at. So she said, okay....So i got biscuits and gravy, hashbrowns with ketchup, sausage patty extra well done, frosted flakes and reduced fat milk, and orange juice....her response....that's it?? lol. Well I thought it was a lot.
Anyways, the doctors were concerned with my blood pressure last night because they thought was going to pass out....it got down to 93/49 but I told them I have low blood pressure anyways and since I'm not stressed with much except cancer these days....I'm okay. So they let me off the hook, reviewed some records, and "let me sleep."
Okay well, that's as exciting news as I go so I'm gonna sit in my bed in my room, that BTW Sarah Mae herself came up last night to visit and we rearranged the furniture! It's a bit crowded where I am and I'm still figuring things out but overall, I like it and I can hopefully get through the next three days with a little more ease. :)
Please, please, please, remember that August 30th at Taft Middle School there will be a bone marrow drive in my honor in the library at from 11:30 to 3:30. If you can't make it, word is you can go to your local OBI (oklahoma blood institute) or check out marrow.org and see where you can get a simple cheek swab to help save a life. :)
Also, remember SCENTSY orders are still being held in my honor through a sweet angel on earth, Melissa, and her own scentsy page. All proceeds will benefit directly to me and every bit helps. She has marked everything 10% off for this occasion so go on and enjoy a few scents!
Also people have been asking to send donations for miscellaneous things so a PAY PAL account has been set up in my name. I'm still working on those details but as soon as I get them, I will be sure to post it on here.
Words can't express how much everyone near and far....friends and strangers....have been helping me fight this battle. It makes me so happy to check my website and see the overwhelming response of views per entry I make. Also through facebook all the responses I get to what I post and all the love and support I'm getting from such unselfish people.
All of this is going to work out, I know it, my life has been touched by so many people and there is a reason for this. I feel it.
Well, I'm gonna turn on the tube and watch something before I start to cry & freak the doctors out. lol
Happy Tuesday!
God is good, he's so good to me. :)
Kim
So today I predict will be a lazy day...seeing as though i'm awake by 9am and not one doctor has came by to see me - word spreads quickly I'm not a morning person, lol. I just ordered breakfast since I've been thinking about it since 6:30am.
Today I ordered an actual breakfast so we'll see how everything tastes. I told the lady on the phone....okay it might be a big random order, IDK where my taste buds are at. So she said, okay....So i got biscuits and gravy, hashbrowns with ketchup, sausage patty extra well done, frosted flakes and reduced fat milk, and orange juice....her response....that's it?? lol. Well I thought it was a lot.
Anyways, the doctors were concerned with my blood pressure last night because they thought was going to pass out....it got down to 93/49 but I told them I have low blood pressure anyways and since I'm not stressed with much except cancer these days....I'm okay. So they let me off the hook, reviewed some records, and "let me sleep."
Okay well, that's as exciting news as I go so I'm gonna sit in my bed in my room, that BTW Sarah Mae herself came up last night to visit and we rearranged the furniture! It's a bit crowded where I am and I'm still figuring things out but overall, I like it and I can hopefully get through the next three days with a little more ease. :)
Please, please, please, remember that August 30th at Taft Middle School there will be a bone marrow drive in my honor in the library at from 11:30 to 3:30. If you can't make it, word is you can go to your local OBI (oklahoma blood institute) or check out marrow.org and see where you can get a simple cheek swab to help save a life. :)
Also, remember SCENTSY orders are still being held in my honor through a sweet angel on earth, Melissa, and her own scentsy page. All proceeds will benefit directly to me and every bit helps. She has marked everything 10% off for this occasion so go on and enjoy a few scents!
Also people have been asking to send donations for miscellaneous things so a PAY PAL account has been set up in my name. I'm still working on those details but as soon as I get them, I will be sure to post it on here.
Words can't express how much everyone near and far....friends and strangers....have been helping me fight this battle. It makes me so happy to check my website and see the overwhelming response of views per entry I make. Also through facebook all the responses I get to what I post and all the love and support I'm getting from such unselfish people.
All of this is going to work out, I know it, my life has been touched by so many people and there is a reason for this. I feel it.
Well, I'm gonna turn on the tube and watch something before I start to cry & freak the doctors out. lol
Happy Tuesday!
God is good, he's so good to me. :)
Kim
Monday, August 20, 2012
Day 506: Fingers Crossed....
So a little update on today's happenings. My breakfast was good. My counts are down as expected from the chemo and no chemo tonight or tomorrow (thank goodness!). Unfortunately my glucose is high and they may have to regulate my blood sugar with some insulin but they said it's normal for chemo patients to have a high glucose so it's nothing to worry about. What's another shot? I'll have to start my neupogen (sp?) or neulasta shots for a white blood count booster so I'm used to them. no big deal.
My oncologist, came in today on rounds and delivered some good news! She said that I may be able to get out of here by Wednesday or Thursday at the earliest. :) so keep your fingers crossed so I can get the heck out of this hospital for a few days. My bone marrow biopsy is scheduled for the 30th and she seemed hopeful that I could do that at the cancer center as an outpatient!! But it'll depend on the attending oncologist at the time. Hopefully, it all works out. pray for me. I have to get out of here.
Today after my breakfast, I laid around for as long as I could stand it and then I took a nice shower. Once again, it was tiring but I made it through. I got a package from my parents today that had some comfy sweats ....it was perfect because it was nice and chilly in my room and it kept me nice and warm throughout the rest of the day. I also got lots of bling jewelry from my mom to help comfort the hair loss situation (which has yet to happen but today during my shower I noticed some hairs coming out easier than usual).
Then I ate some leftover chili that I had lying around in the refrigerator that put me in just enough of a coma to get about an hour of shut eye.
I also got report from the transplant nurse that I had 3 hopeful GREAT matches out there in the world so that seems to be falling into place perfectly. There is still a bone marrow drive on AUGUST 30th at Taft Middle School and they said it could take about 5 days to be put in the registry and do preliminary testing. So if anyone who is planning to get checked, you could be my bone marrow donor...it would be a rush but they said it's possible! :)
Okay well, I'm going to watch some TV, let this chili settle in my stomach some more and wait for some fabulous visitors to come keep me company! :)
God has been so good to me today and I want to once again thank everyone out there for the constant prayers that keep me going everyday.
Love you all,
Kim
My oncologist, came in today on rounds and delivered some good news! She said that I may be able to get out of here by Wednesday or Thursday at the earliest. :) so keep your fingers crossed so I can get the heck out of this hospital for a few days. My bone marrow biopsy is scheduled for the 30th and she seemed hopeful that I could do that at the cancer center as an outpatient!! But it'll depend on the attending oncologist at the time. Hopefully, it all works out. pray for me. I have to get out of here.
Today after my breakfast, I laid around for as long as I could stand it and then I took a nice shower. Once again, it was tiring but I made it through. I got a package from my parents today that had some comfy sweats ....it was perfect because it was nice and chilly in my room and it kept me nice and warm throughout the rest of the day. I also got lots of bling jewelry from my mom to help comfort the hair loss situation (which has yet to happen but today during my shower I noticed some hairs coming out easier than usual).
Then I ate some leftover chili that I had lying around in the refrigerator that put me in just enough of a coma to get about an hour of shut eye.
I also got report from the transplant nurse that I had 3 hopeful GREAT matches out there in the world so that seems to be falling into place perfectly. There is still a bone marrow drive on AUGUST 30th at Taft Middle School and they said it could take about 5 days to be put in the registry and do preliminary testing. So if anyone who is planning to get checked, you could be my bone marrow donor...it would be a rush but they said it's possible! :)
Okay well, I'm going to watch some TV, let this chili settle in my stomach some more and wait for some fabulous visitors to come keep me company! :)
God has been so good to me today and I want to once again thank everyone out there for the constant prayers that keep me going everyday.
Love you all,
Kim
Day 506: A little more pleasant today...
WOW, I had no idea how much chemo actually took a toll on my body. Yesterday, I was almost miserable tired and now...i've been up for like 30 minutes! Which reminds me....last night I must've been delirious (again) because I totally didn't have chemo last night. It was like 9:30 and they gave me my steriods and I was like, what happened to the chemo?? The nurse was like...it's been 5 doses already silly!
So I was like...woo hoo, give me my ambien! It was nice. And my sleep was so much better. I actually woke up and was talking to the doctors this morning and I noticed that I"m a lot more pleasant when I don't have that junk in me. lol. Who would've thought. I asked my doctors about their day, cracked a joke or two, and gave them a full report of why I was so awful the past few days. You could tell that they liked me today. lol.
Well, I think that my hair is starting to fall out. It doesn't seem as bad yet but I definitely want to get rid of it because having bed head sucks with short hair and my sister got me some cool new BLING earrings that will look perfect with my baseball hat and possibly a scarf if I'm up for it.
Right now, i'm awake and looking for something to watch on TV. I might feel so good to do a little online shopping....okay maybe not yet. that is dangerous! I ordered a hoodie from nike.com and I was soooo tempted to buy jogging shoes but I was like....what the heck do you need jogging shoes for? lol.
Last night I had a baked potato soup craving and God must've known because a nurse came in and said, Hey Kim a nurse brought potato soup, do you want me to get you a cup of it? Although it was kinda late, of course I said yes and it was DELICIOUS!!
I didn't get to make my video for my students last night like I wanted to because I just felt horrible. So today I feel bad but I think it'll keep them on their toes. I hope they're excited for it. IDK what I"m going to say but I'll figure that out, I'm a teacher, I can wing anything! :)
Well, my food is here and I'm STARVING (I blame the steroids) I just hope it tastes good...fingers crossed.
I'll write more later,
kim
p.s. HUGE CONGRATULATIONS to my friend Michelle and her new baby Ava. It's been a much anticipated summer and I bet that little girl is going to come out brown because of all the sun we got all summer! :)
So I was like...woo hoo, give me my ambien! It was nice. And my sleep was so much better. I actually woke up and was talking to the doctors this morning and I noticed that I"m a lot more pleasant when I don't have that junk in me. lol. Who would've thought. I asked my doctors about their day, cracked a joke or two, and gave them a full report of why I was so awful the past few days. You could tell that they liked me today. lol.
Well, I think that my hair is starting to fall out. It doesn't seem as bad yet but I definitely want to get rid of it because having bed head sucks with short hair and my sister got me some cool new BLING earrings that will look perfect with my baseball hat and possibly a scarf if I'm up for it.
Right now, i'm awake and looking for something to watch on TV. I might feel so good to do a little online shopping....okay maybe not yet. that is dangerous! I ordered a hoodie from nike.com and I was soooo tempted to buy jogging shoes but I was like....what the heck do you need jogging shoes for? lol.
Last night I had a baked potato soup craving and God must've known because a nurse came in and said, Hey Kim a nurse brought potato soup, do you want me to get you a cup of it? Although it was kinda late, of course I said yes and it was DELICIOUS!!
I didn't get to make my video for my students last night like I wanted to because I just felt horrible. So today I feel bad but I think it'll keep them on their toes. I hope they're excited for it. IDK what I"m going to say but I'll figure that out, I'm a teacher, I can wing anything! :)
Well, my food is here and I'm STARVING (I blame the steroids) I just hope it tastes good...fingers crossed.
I'll write more later,
kim
p.s. HUGE CONGRATULATIONS to my friend Michelle and her new baby Ava. It's been a much anticipated summer and I bet that little girl is going to come out brown because of all the sun we got all summer! :)
Sunday, August 19, 2012
Day 505: Sunday's are meant for rest...
Today my oncology team let me sleep. I didn't end up going to sleep until 4am and it was rough. I just couldn't go to sleep, no matter what I tried. When I heard them come in this morning, I heard my doctor say just let her sleep, I'm sure there have been no changes.
It was nice. So I slept until about 12:30 and got up and was HUNGRY. I ordered some breakfast (a bagel) and lunch (hamburger) and of course a fresh fruit plate. Which I'm not sure why they haven't changed my diet because according to my latest blood counts, my white blood count is at a 1. hmm.
My red blood count is at a 2.4 (normal is 3.9-5.1) and my platelets are sitting low at a 14 (normal is about 140). I'm showing signs of bruises but nothing too crazy....yet.
I didn't have visitors today nor did I feel like visitors. I just felt like laying in bed all day and that's what I did. It's 9pm and I'm already ready for bed but they haven't even started my pre-meds yet. I guess they're running behind. Which is fine by me because I ate a whole can of chicken soup about an hour ago and I was afraid my nausea would be strong. But nothing yet. I've been trying to flush with water as much as possible but that CHEMO taste is just awful.
Anyways, not much else to report except chemo feels like it's finally taking a toll on my body. But it's day 5 and I have 3 days of rest after this before my next bag. I've been through tougher, I can do it. Well anyways, it's a short blog tonight, I'm ready to go to sleep.
Thanks for reading. Sorry it was boring. lol.
Good night,
kim
It was nice. So I slept until about 12:30 and got up and was HUNGRY. I ordered some breakfast (a bagel) and lunch (hamburger) and of course a fresh fruit plate. Which I'm not sure why they haven't changed my diet because according to my latest blood counts, my white blood count is at a 1. hmm.
My red blood count is at a 2.4 (normal is 3.9-5.1) and my platelets are sitting low at a 14 (normal is about 140). I'm showing signs of bruises but nothing too crazy....yet.
I didn't have visitors today nor did I feel like visitors. I just felt like laying in bed all day and that's what I did. It's 9pm and I'm already ready for bed but they haven't even started my pre-meds yet. I guess they're running behind. Which is fine by me because I ate a whole can of chicken soup about an hour ago and I was afraid my nausea would be strong. But nothing yet. I've been trying to flush with water as much as possible but that CHEMO taste is just awful.
Anyways, not much else to report except chemo feels like it's finally taking a toll on my body. But it's day 5 and I have 3 days of rest after this before my next bag. I've been through tougher, I can do it. Well anyways, it's a short blog tonight, I'm ready to go to sleep.
Thanks for reading. Sorry it was boring. lol.
Good night,
kim
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