Well it's back to Monday and I've been in here for 17 days. This reminds me too much of my mercy days when I was in for like 25 days or something. Except Mercy was so much "cushier," as I always bring that up everytime I write about the two. But I'm growing to tolerate it.
This morning was yet another rough night. I don't remember my blog from the night before and I hate going back and reading them the night before because there are so many mistakes that I've made that I want to change. But I don't. I want people to experience the chemo-ness in full. Short term memory and all....because chemo brain IS real. I forget things I'm talking about, and my mind is just scattered in general (if you know me at all) that when I'm on medication, it's 40x's worse. But God loves me anyway. Today it hasn't been too bad but now I find myself falling asleep at the drop of the hat. I watch a lot less TV so what else do I do than? really, I couldn't answer that question. This calls for an experiment....to be called.....A day in the life of Kim Begay. I'm going to sit with paper right beside me and record all that I do and what gets done to me (vitals, medication, converation...) Etc. This will start at midnight.....if I remember, which I probably will because it seems as though I have an internal clock that wakes me up then for no particular reason.
I think I was going to do this in my past blog....but since my sleep has probably been cut because old people wake up early an all, I think I can manage.
Anyways, back to this morning, it was terrible. My nurse didn't have very good bedside manners and it was really like a person collecting his/her paycheck. Sure I understand it's the night shift, but you chose it and had to accept it. He was just careless in everything he did and never gave off any type of remorse for waking me up, even though I tend to wake up pretty easy and unless I'm dealing with extreme pain or nausea, I even try to be pleasant. It reminded me of teachers who do the same thing, collect the pay check, abuse the system, and really, it's the kids who are suffering. I don't know how else to put that out there without putting him on blast because that really isn't what this blog is about. Its about the positives and the unexpectedness one or familly's can go though relating to the cancer experience. Anyways, just know I had a terrible nurse, who shall remain nameless.
Other sub sequential events followed my awful morning that I care not to share on here because it will lead to an emotional break down (that is quite normal) for patients to have. I'd rather not relive those moments, I just pray and hope that no one has to experience it. I'll leave it at that. Don't ask me privately, because the only response will be "huh?"
So after an emotional breakdown early this morning, I fell asleep hard and slept until around 10am and debated on whether or not to call down to brunch but then realized that my stomach is getting mainly upset when I fill it with products like dairy (go figure) because it's hard to break down (who would've thunk) so my morning cereal that I've been eating everyday, as well as my toasted bagel with creme cheese wasn't exactly the best thing I could've been putting in my body at the beginning of the day. But you learn as you go and I definitely did. Right now, I'm on a chicken noodle soup diet because that seems to be getting the job done and anytime I want it, I have crackers on deck and even a Shasta Twist to go with it just in case. My carbonation craving is back (the sensation that you get as soon as you take your first drink of a newly opened bottle or can) so forget yellow gatorade (that's chemo drink b/c of electrolytes and sugar), I'm all about the CANS of coke, sprite, cherry coke, Lemon-Lime coke perhaps? don't rush up here with a 24 pack of little coke, just a mini six pack will do because I'll only drink the first half of it. LOL. WOW, I just read that again and NO i'm not saying if you visit you have to bring one....but many of you ask if I want something. And that's my want. LOL. I'm so picky.
Well it's 9pm and every night at 9 I watch King of Queens on TV (my only show for the day) and I need to get up and make this soup. Have a good night....No word on release yet, but like I said, the doctor is being cautious and I ran a fever last night so blood cultures will be done in the morning! :)
Good night,
Love you all.
Kim
I'm Kim and I'm a 25 year old school teacher and on April 2, 2011, just 501 days ago, I started my first blog documenting my first cancer experience. It's been 225 days since I thought my journey was over and I never had to do this again. On August 14, 2012, just 500 days into my new life, I found out that I had relapsed and the Acute Lymphocytic Leukemia came back.
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Monday, August 27, 2012
Sunday, August 26, 2012
Day 511: Everybody is sleeping...
I think the whole OKC metro is sleeping. myself influded. i've been waking up to bizarre dreams, so bizarre that If I don't automatcally tell someone I'll forget them.
Today I got three surprises in the mail, one, a card from a fellow HS soccer buddy explaining how bad she feels seeing as though I have to go through this AGAIN. :( Another was from her Mother, who again, expressed her deepest regret of my relapse. Someimes I need tese constant reminders to remind myself that I'm not superhuman, no one is. Were just people who have chosen to take a different route in life. It will get us to the same destinations, people will just have to endure me.
And lastly, but never leastly, a sweet friend of mine. sent a me a "care ackage" that I received and it was WONDERFUL. I had all the miscellaneous thing I may have not. at my finger tips. Some may or may have not doctor approved but like said before, YOLO! lol. I got a new set of NEW set of bed sheets....which is perfect because I spilled all my late night chicken noodle soup . I had to use ugly white sheets for the night. :) She also got me a new fuzzy zebra throw pillow (for the cold headed nights, and a fuzzy blanket they Ine been napping all day in it and it is perfect!! Thank you Geri! :) There were a lot more knick knacks but I chose to keep these as more gifts to myself! To give my elf a surprise everyday. :)
on the medical side, regular finger pricks are taken; I've now had to "scares" but I think it was the quality of snow.....HAHAHAHAHAHA. See this is just went through my mind As I wrote, I was thinking about learning to how snow board. I was going to erase it BUT once I realized what was going go...I thought I'd throw you off. LOL. it's that bizzarre? So this blog could be worse.
i
Anways, back to medical news, I received one unit of blood KEEP DONATING) and ONE bag of platelets...fairly early this evening. this Sunday shift has their stuff together.
Before transfusion my platelets were at an 8...White Blood Cell (0.1).....Red Blood Cell (3.6) and platelets were an 8.
so just make sure you're lean and sick ree. My potassium also slipped a little below normal so they're giving giving me a potassium IV help boost me up. As always, the usual's are low and "monitoring: I must do.
Today I got three surprises in the mail, one, a card from a fellow HS soccer buddy explaining how bad she feels seeing as though I have to go through this AGAIN. :( Another was from her Mother, who again, expressed her deepest regret of my relapse. Someimes I need tese constant reminders to remind myself that I'm not superhuman, no one is. Were just people who have chosen to take a different route in life. It will get us to the same destinations, people will just have to endure me.
And lastly, but never leastly, a sweet friend of mine. sent a me a "care ackage" that I received and it was WONDERFUL. I had all the miscellaneous thing I may have not. at my finger tips. Some may or may have not doctor approved but like said before, YOLO! lol. I got a new set of NEW set of bed sheets....which is perfect because I spilled all my late night chicken noodle soup . I had to use ugly white sheets for the night. :) She also got me a new fuzzy zebra throw pillow (for the cold headed nights, and a fuzzy blanket they Ine been napping all day in it and it is perfect!! Thank you Geri! :) There were a lot more knick knacks but I chose to keep these as more gifts to myself! To give my elf a surprise everyday. :)
on the medical side, regular finger pricks are taken; I've now had to "scares" but I think it was the quality of snow.....HAHAHAHAHAHA. See this is just went through my mind As I wrote, I was thinking about learning to how snow board. I was going to erase it BUT once I realized what was going go...I thought I'd throw you off. LOL. it's that bizzarre? So this blog could be worse.
i
Anways, back to medical news, I received one unit of blood KEEP DONATING) and ONE bag of platelets...fairly early this evening. this Sunday shift has their stuff together.
Before transfusion my platelets were at an 8...White Blood Cell (0.1).....Red Blood Cell (3.6) and platelets were an 8.
so just make sure you're lean and sick ree. My potassium also slipped a little below normal so they're giving giving me a potassium IV help boost me up. As always, the usual's are low and "monitoring: I must do.
Saturday, August 25, 2012
Day 511: What hours?
I totally just woke up to my nurse, Fe, pricking my finger, taking my vitals and giving me medications. Not weird at all....but I seriously thought it was 3am!! These past couple days I didn't realized how much i have been relying on morphine to get me through my pain that I might be addiced to it in some way. WHAT?! Even last night when Emily came down to visit with me, I was dozing on and off and today while Sarah waited for nurses to come, I was in a completely relaxed state of mind Constantine asking myself...did you just really say that? lol, I"m sure I sounded silly.
Oh the side effects.
So last night after the WORST day of my life, I managed to get myself up and be transportated to CT scan where they did a CT of my pancreas. When I asked the morning doctors about it, most of them looked dum founded and the typical "i'm not sure yet" answer of "We'll continue to monitor your levels" came about and I"m back to square one. I had a pretty good bowel movement (considering that I haven't eaten in in the past 48 hours and that was a relief. I think it was all the SERILE water I had to drink right before the CT.
Today was once again an overall relaxing day. I din't really want visitors becase I just wanted to sleep but two ended up coming anyway, and I'm so happy they did.
I noticed that my hair has been coming out a LOT easier so today I told myself....Self, its a goodday to be bald. And I did it. Deontre (an old student of mine) came up and had no idea what hew as in for. Sarah Mae came up too and I don't think she expected it...I mean, it's not everyday someone says.....hey, shave my head. And today I just felt ready. I didn't have once ounce of emotion....almost it was like....okay you might as well get it done now so your hair can at least be fixed during bedride report or doctors rounds. I may get some reaction tomorrow. GOOD.''So for those of you who are sending me the typical, you look becautiful with or without your hair, it always grows back, it'll be back before you know it, people can't even tell if it's a wig....save it. It's soft of annoying. Now the first time....WHOLE different story. (check out that emotional whirlwind post.)
Well it's 9:18pm and my nurse heated me up some SOUP so I'm gonna go enjoy that and then SLEEP. I can't seem to find it when I need it. :)
xoxo
kim
Oh the side effects.
So last night after the WORST day of my life, I managed to get myself up and be transportated to CT scan where they did a CT of my pancreas. When I asked the morning doctors about it, most of them looked dum founded and the typical "i'm not sure yet" answer of "We'll continue to monitor your levels" came about and I"m back to square one. I had a pretty good bowel movement (considering that I haven't eaten in in the past 48 hours and that was a relief. I think it was all the SERILE water I had to drink right before the CT.
Today was once again an overall relaxing day. I din't really want visitors becase I just wanted to sleep but two ended up coming anyway, and I'm so happy they did.
I noticed that my hair has been coming out a LOT easier so today I told myself....Self, its a goodday to be bald. And I did it. Deontre (an old student of mine) came up and had no idea what hew as in for. Sarah Mae came up too and I don't think she expected it...I mean, it's not everyday someone says.....hey, shave my head. And today I just felt ready. I didn't have once ounce of emotion....almost it was like....okay you might as well get it done now so your hair can at least be fixed during bedride report or doctors rounds. I may get some reaction tomorrow. GOOD.''So for those of you who are sending me the typical, you look becautiful with or without your hair, it always grows back, it'll be back before you know it, people can't even tell if it's a wig....save it. It's soft of annoying. Now the first time....WHOLE different story. (check out that emotional whirlwind post.)
Well it's 9:18pm and my nurse heated me up some SOUP so I'm gonna go enjoy that and then SLEEP. I can't seem to find it when I need it. :)
xoxo
kim
Friday, August 24, 2012
Day 510: 24+ hours
I'm so sorry to have kept everyone so worried. I have had the absolute MOST MISERABLE 24+ hours.
After the Chemotherapy (day 9) I started to feel just sick to my stomach. After visitors left, I had enough energy for my bootleg pedicure and just as soon as I finished that, I laid down to go to sleep because my stomach was hurting pretty bad. I could pinpoint the exact direction and did nothing but complain to the night nurse.
It felt as thought I had to use the restroom every 30 seconds. I had to stay hunched over at all times and I couldn't even lay down in any way possible to find a 10% comfortable position. So the whole night, I laid as still as possible and took my ambien. I got an OKAY amount of sleep but then, the morning happened.As soon as I woke up my pancreas was all sorts of swollen....or so the doctors say. I just knew I had to use the restroom. I painfully made my way to the restroom and noting. I felt a little up for eating so I ordered some cereal (bad idea) and as soon as I finished that, I felt like I got immediate food poisoning. I wasn't sweating or anything just in a WHOLE LOT OF EXCRUCIATING pain in my stomach (right above the belly button).
So then after complaining endlessly and crying, the nurses started giving me morphine to off set the pain every 2 hours. But morphine is almost an instant action type thing and after about an hour and a half, the pain returned. On top of all of tis, I was still hooked up to fluids and having to make it up and about to go to the restroom.
So yesterday my day went like this....woke up...morphine injection...lay down...get "comfortable"....get up....hunch/walk to the restroom....more morphine. I also have the theory that all the insulin injections I was getting the past two days had something to do with it. Or just the bag of chemo was really that harsh.
So I'm sorry if yesterday you tried to contact me, I was so beyond out of it, if you did get a reply, I was probably high from all the pain killers. I didn't even turn on the TV, radio, anything. I also didn't eat at all nor pretty much drink anything for that matter. On a brighter note, my glucose levels were WAYYY down. THe nurses all day kept trying to get me to at least eat soup but the idea of food in my stomach was TOO MUCH.
So then last night, the same thing happened again. It was an overall uncomfortable mess and I found myself waking up and hunching in a ball sitting indian style in my bed. Luckily I had great nurses who kept onto those doctors about my pain level We got to the point that EVERY 2 hours my pain was rated 9 or 10 out of 10 and nothing would help except morphine.
So today when I woke up, I felt the same, my stomach hurts a little less when I move positions and since my doctors have figured out that when I say I'm in pain....i must mean I'm in pain....they're sending me down to get a CT scan and possibly an ultrasound to check things out. Okay well, I have been sitting for the last 15 minutes and I'm starting to get sick again.
I'm gonna lie here until transport comes to get me because that itself with take a lot of energy. :( :(
Please pray for me. I'll try to write more later.
kim
After the Chemotherapy (day 9) I started to feel just sick to my stomach. After visitors left, I had enough energy for my bootleg pedicure and just as soon as I finished that, I laid down to go to sleep because my stomach was hurting pretty bad. I could pinpoint the exact direction and did nothing but complain to the night nurse.
It felt as thought I had to use the restroom every 30 seconds. I had to stay hunched over at all times and I couldn't even lay down in any way possible to find a 10% comfortable position. So the whole night, I laid as still as possible and took my ambien. I got an OKAY amount of sleep but then, the morning happened.As soon as I woke up my pancreas was all sorts of swollen....or so the doctors say. I just knew I had to use the restroom. I painfully made my way to the restroom and noting. I felt a little up for eating so I ordered some cereal (bad idea) and as soon as I finished that, I felt like I got immediate food poisoning. I wasn't sweating or anything just in a WHOLE LOT OF EXCRUCIATING pain in my stomach (right above the belly button).
So then after complaining endlessly and crying, the nurses started giving me morphine to off set the pain every 2 hours. But morphine is almost an instant action type thing and after about an hour and a half, the pain returned. On top of all of tis, I was still hooked up to fluids and having to make it up and about to go to the restroom.
So yesterday my day went like this....woke up...morphine injection...lay down...get "comfortable"....get up....hunch/walk to the restroom....more morphine. I also have the theory that all the insulin injections I was getting the past two days had something to do with it. Or just the bag of chemo was really that harsh.
So I'm sorry if yesterday you tried to contact me, I was so beyond out of it, if you did get a reply, I was probably high from all the pain killers. I didn't even turn on the TV, radio, anything. I also didn't eat at all nor pretty much drink anything for that matter. On a brighter note, my glucose levels were WAYYY down. THe nurses all day kept trying to get me to at least eat soup but the idea of food in my stomach was TOO MUCH.
So then last night, the same thing happened again. It was an overall uncomfortable mess and I found myself waking up and hunching in a ball sitting indian style in my bed. Luckily I had great nurses who kept onto those doctors about my pain level We got to the point that EVERY 2 hours my pain was rated 9 or 10 out of 10 and nothing would help except morphine.
So today when I woke up, I felt the same, my stomach hurts a little less when I move positions and since my doctors have figured out that when I say I'm in pain....i must mean I'm in pain....they're sending me down to get a CT scan and possibly an ultrasound to check things out. Okay well, I have been sitting for the last 15 minutes and I'm starting to get sick again.
I'm gonna lie here until transport comes to get me because that itself with take a lot of energy. :( :(
Please pray for me. I'll try to write more later.
kim
Wednesday, August 22, 2012
Day 508: Good thing I can type without looking...
Today was an OVERALL GREAT DAY. It was SHOWER day and like I said before....shower days are like heaven. I feel clean and I get new sheets on my bed and I even manage to get enough energy to pick up after myself. I got up relatively early...9 am...and ordered once again a FULL breakfast and between doctors managed to relax and catch a few zzzz's.
The main attending oncologist again shut my head down with the idea of not going home because he's concerned about my counts. But the seed has been planted that I'm READY to go home and I promise to be good and be hygienic like I know I can be. Everyone is rooting for me because they all know it's absolute torture being here and laying around all day getting fluids (saline) like a boss. Not exactly cool. All it makes me do is use the restroom every hour almost on the hour and it's annoying....especially if I just want to sleep.
Today after my long shower, I got my day 9 of chemo (even though i'm convinced it is only day 8) around 3 or 4 because it seemed to get a little busy around here. My friend Tara came with LUNCH and it was seriously meant to be because I had just ordered nasty chicken breast and baked potato for lunch (still on potato kick) and then Tara was like...what are you doing? Are you hungry? So we got some SUBWAY and when she got here the chemo started. It went over 2 hours and it was just a little tiny bag. meaning...it was more harsh. I got pre-medicated about 30 minutes before with benadryl through an IV (my absolute favorite thing to get because you get all warm and fuzzy inside and just have an opportunity to RELAX completely.) and some steroids so my schedule was so messed up because after the relaxation....I got HUNGRY and ate all my food.
Tara was here for a while then I got two more visitors from my college days, Kyndall and Brent!! They brought me some goodies (snacks) and some SHEETS!! They're so pretty. All three are nurses so it was sorta funny whenever my IV would go off....they were all on alert and they sat and talked nursing stuff and compared places and how lax this place is. lol.
As they were here visiting an old student of mine (2nd year student) Deontre came!! I just love when old students come because it makes me seem like I left a good impact and they care more than outside the classroom. He was doing good and we rambled over his plans for the future.
During the time, they gave me my FIRST finger prick and talk about OUCH. I've been through lots of grueling procedures since all this cancer stuff came about but I was SOOO nervous about getting a glucose test. I freaked out and may or may not have screamed when I got it. My friends laughed at me but I think all those glucose commercials on TV freaked me out even more about the pain. My blood sugar was up in the 300's so they started insulin shots again...I got one in the stomach to bring it down and it just felt weird. Not necessarily because it was a shot in the stomach (I've had PLENTY before) but just the fact that it was insulin that made me nervous. I got another one at 9 to see if it went down and this time it was around 250 or something so they once again gave me another.
After Kyndall, Brent, and Tara left Deontre stuck around and two Tafties (school where I work at) came to visit and brought me a McNellie burger and it was once again....WONDERFUL. :) They stayed a little while to talk, collect my laundry, and dropped off my "bootleg" pedicure stuff.
Then Deontre went home and I got started on my feet. I soaked them in my room, filed, cut, and did the whole pedicure thing myself. Everyone checks feet around here and since I'm diabetic for a little while....feet are important right??? That's what Forrest Gump taught me. LOL.
The ladies who came in were like...uhhh Kim, what are you doing? Then I had to explain to them it's been so long since i've got a GOOD manicure/pedicure and they instantly understood. So until I get out of here....this will have to do. My feet feel 100x's better and tomorrow I'll paint them a little.
The chemo tonight made my stomach pretty upset (which may be a combination of eating so MUCH these past two days, compared to the first 7 days) so I had to lay down curled in a ball for a while. My stomach still kinda hurts but it's almost ambien time so I'll tough it out for now. I got Nausea injection to help but it has yet to kick in. I hope this isn't any indication for my day tomorrow....it's going to be rough if it is.
Well, other than that, I'm stocked up on chemo craving snacks and I'm ready to go to sleep. Oh my weight is down 14 lbs since I got here but they said I actually gained 3 lbs back the past 2 days since my appetite has been good. No where near how skinny I was last year but most of my liver and spleen function has returned and my food isn't just sitting like it was when I first got admitted. Thank you jesus!!
Okay well, I'm about to call up this nurse, crawl under my blankets, put on a new eye mask I got today and enjoy my much needed night.
I'm so tired (probably because lack of blood) and just had an overall big day with visitors. But I'm thankful for all of them because it's days like this that get me through the worst days that are ahead. I'm so glad I can reflect on this later and smile about a good day like this.
Thanks for the prayers, good thoughts and all that jazz from all of you because without that, life would be a LOT harder. I love you all.....good night!!
xoxo
KIm
The main attending oncologist again shut my head down with the idea of not going home because he's concerned about my counts. But the seed has been planted that I'm READY to go home and I promise to be good and be hygienic like I know I can be. Everyone is rooting for me because they all know it's absolute torture being here and laying around all day getting fluids (saline) like a boss. Not exactly cool. All it makes me do is use the restroom every hour almost on the hour and it's annoying....especially if I just want to sleep.
Today after my long shower, I got my day 9 of chemo (even though i'm convinced it is only day 8) around 3 or 4 because it seemed to get a little busy around here. My friend Tara came with LUNCH and it was seriously meant to be because I had just ordered nasty chicken breast and baked potato for lunch (still on potato kick) and then Tara was like...what are you doing? Are you hungry? So we got some SUBWAY and when she got here the chemo started. It went over 2 hours and it was just a little tiny bag. meaning...it was more harsh. I got pre-medicated about 30 minutes before with benadryl through an IV (my absolute favorite thing to get because you get all warm and fuzzy inside and just have an opportunity to RELAX completely.) and some steroids so my schedule was so messed up because after the relaxation....I got HUNGRY and ate all my food.
Tara was here for a while then I got two more visitors from my college days, Kyndall and Brent!! They brought me some goodies (snacks) and some SHEETS!! They're so pretty. All three are nurses so it was sorta funny whenever my IV would go off....they were all on alert and they sat and talked nursing stuff and compared places and how lax this place is. lol.
As they were here visiting an old student of mine (2nd year student) Deontre came!! I just love when old students come because it makes me seem like I left a good impact and they care more than outside the classroom. He was doing good and we rambled over his plans for the future.
During the time, they gave me my FIRST finger prick and talk about OUCH. I've been through lots of grueling procedures since all this cancer stuff came about but I was SOOO nervous about getting a glucose test. I freaked out and may or may not have screamed when I got it. My friends laughed at me but I think all those glucose commercials on TV freaked me out even more about the pain. My blood sugar was up in the 300's so they started insulin shots again...I got one in the stomach to bring it down and it just felt weird. Not necessarily because it was a shot in the stomach (I've had PLENTY before) but just the fact that it was insulin that made me nervous. I got another one at 9 to see if it went down and this time it was around 250 or something so they once again gave me another.
After Kyndall, Brent, and Tara left Deontre stuck around and two Tafties (school where I work at) came to visit and brought me a McNellie burger and it was once again....WONDERFUL. :) They stayed a little while to talk, collect my laundry, and dropped off my "bootleg" pedicure stuff.
Then Deontre went home and I got started on my feet. I soaked them in my room, filed, cut, and did the whole pedicure thing myself. Everyone checks feet around here and since I'm diabetic for a little while....feet are important right??? That's what Forrest Gump taught me. LOL.
The ladies who came in were like...uhhh Kim, what are you doing? Then I had to explain to them it's been so long since i've got a GOOD manicure/pedicure and they instantly understood. So until I get out of here....this will have to do. My feet feel 100x's better and tomorrow I'll paint them a little.
The chemo tonight made my stomach pretty upset (which may be a combination of eating so MUCH these past two days, compared to the first 7 days) so I had to lay down curled in a ball for a while. My stomach still kinda hurts but it's almost ambien time so I'll tough it out for now. I got Nausea injection to help but it has yet to kick in. I hope this isn't any indication for my day tomorrow....it's going to be rough if it is.
Well, other than that, I'm stocked up on chemo craving snacks and I'm ready to go to sleep. Oh my weight is down 14 lbs since I got here but they said I actually gained 3 lbs back the past 2 days since my appetite has been good. No where near how skinny I was last year but most of my liver and spleen function has returned and my food isn't just sitting like it was when I first got admitted. Thank you jesus!!
Okay well, I'm about to call up this nurse, crawl under my blankets, put on a new eye mask I got today and enjoy my much needed night.
I'm so tired (probably because lack of blood) and just had an overall big day with visitors. But I'm thankful for all of them because it's days like this that get me through the worst days that are ahead. I'm so glad I can reflect on this later and smile about a good day like this.
Thanks for the prayers, good thoughts and all that jazz from all of you because without that, life would be a LOT harder. I love you all.....good night!!
xoxo
KIm
Tuesday, August 21, 2012
Day 507: Familiar Nights...
Well it's 11pm and I'm so ready to go to sleep. Except...they are just now giving me my blood. They just finished my platelet transfusion and I already feel my blood clotting! (not really but it's the idea that counts!) A nurse came in who remembers me and she said I actually look healthier and still have color to me so I'm not as pale as I think I am.
Today has been an overall good day. I had rather good company, starting off early around 10, Kim, a visitor from a local church that has heard all my stories through the wonderful Ray family. She came to visit and say hi and just check on me and it feels good to know people are doing what they do and looking after me.
Then, my doctors finally graced my presence as I was eating and their response was....well looks like someone got their appetite back. lol. No shame here.
The new attending doctor said he doesn't want to release me just yet because he's afraid I'll need more transfusions. So the plan is to get antsy enough and bother him enough to get him to let me go home for a few days....I'll work on this scheme later.
After the normal rounds, I got myself comfortable and fell asleep until about lunch time and had a lunch time visitor, JESSICA, and she brought me baked potato soup (my most recent craving) and it was nice to see her. It was a quick sweet visit but much needed. :)
Then, I put myself into a food coma (again) and passed out until doctors, nurses, techs kept coming through and I woke up to the random neighborhood chase going through the neighborhoods I run at when I run outside....scary. But it was midday and no one was harmed, it was just cool seeing the houses I run by on TV. lol.
Then later, the Ray's came by again to say hi and we talked about the latest hospital happenings and caught up and from there my sister came by to pick up some money so she could get me some skin care regimen stuff going since the Chemotherapy just aggravates my skin, I figured I'd start early and test some products before i actually go through all this again. Then my other friend, Ashley, came by with some dinner (YUMMY) and we sat and talked more. I just love visitors because they keep me in touch with just life outside the hospital because hospital talk can be lame and there is only so many interesting stories I can tell. lol. And I like to live vicariously though people while I'm down for the count.....
My sister stayed for a while but she just left. Now I'm ready for this blood transfusion and this ambien so I can SLEEP tonight. It's cold in my room, just how I like it before i go to sleep. :)
Well tomorrow should be good because I won't be so dang tired from my lack of blood and it's shower day!! it's the little things in life that I get excited over....and that's okay.
I'm off of here, love you all.
xoxo
Kim
Today has been an overall good day. I had rather good company, starting off early around 10, Kim, a visitor from a local church that has heard all my stories through the wonderful Ray family. She came to visit and say hi and just check on me and it feels good to know people are doing what they do and looking after me.
Then, my doctors finally graced my presence as I was eating and their response was....well looks like someone got their appetite back. lol. No shame here.
The new attending doctor said he doesn't want to release me just yet because he's afraid I'll need more transfusions. So the plan is to get antsy enough and bother him enough to get him to let me go home for a few days....I'll work on this scheme later.
After the normal rounds, I got myself comfortable and fell asleep until about lunch time and had a lunch time visitor, JESSICA, and she brought me baked potato soup (my most recent craving) and it was nice to see her. It was a quick sweet visit but much needed. :)
Then, I put myself into a food coma (again) and passed out until doctors, nurses, techs kept coming through and I woke up to the random neighborhood chase going through the neighborhoods I run at when I run outside....scary. But it was midday and no one was harmed, it was just cool seeing the houses I run by on TV. lol.
Then later, the Ray's came by again to say hi and we talked about the latest hospital happenings and caught up and from there my sister came by to pick up some money so she could get me some skin care regimen stuff going since the Chemotherapy just aggravates my skin, I figured I'd start early and test some products before i actually go through all this again. Then my other friend, Ashley, came by with some dinner (YUMMY) and we sat and talked more. I just love visitors because they keep me in touch with just life outside the hospital because hospital talk can be lame and there is only so many interesting stories I can tell. lol. And I like to live vicariously though people while I'm down for the count.....
My sister stayed for a while but she just left. Now I'm ready for this blood transfusion and this ambien so I can SLEEP tonight. It's cold in my room, just how I like it before i go to sleep. :)
Well tomorrow should be good because I won't be so dang tired from my lack of blood and it's shower day!! it's the little things in life that I get excited over....and that's okay.
I'm off of here, love you all.
xoxo
Kim
Day 507: I've had better nights....
So I got NO SLEEP last night what so ever. I tried to do it without my ambien pills and yup, impossible. It seemed like the tech and nurses were on unrelated schedules and I swear every 2 hours they came in to give ice, give meds, take vitals, say hi, chit chat....everything and anything in between. But it is their job. Also the wax guy who was doing the floors decided to start at like 9pm and his shoulder kept hitting my light (as well as other not so gracious patients) on. The lady next door got a hold of him pretty quick and yelled at him for a while for the whole floor so I didn't see a need to say anything.
So today I predict will be a lazy day...seeing as though i'm awake by 9am and not one doctor has came by to see me - word spreads quickly I'm not a morning person, lol. I just ordered breakfast since I've been thinking about it since 6:30am.
Today I ordered an actual breakfast so we'll see how everything tastes. I told the lady on the phone....okay it might be a big random order, IDK where my taste buds are at. So she said, okay....So i got biscuits and gravy, hashbrowns with ketchup, sausage patty extra well done, frosted flakes and reduced fat milk, and orange juice....her response....that's it?? lol. Well I thought it was a lot.
Anyways, the doctors were concerned with my blood pressure last night because they thought was going to pass out....it got down to 93/49 but I told them I have low blood pressure anyways and since I'm not stressed with much except cancer these days....I'm okay. So they let me off the hook, reviewed some records, and "let me sleep."
Okay well, that's as exciting news as I go so I'm gonna sit in my bed in my room, that BTW Sarah Mae herself came up last night to visit and we rearranged the furniture! It's a bit crowded where I am and I'm still figuring things out but overall, I like it and I can hopefully get through the next three days with a little more ease. :)
Please, please, please, remember that August 30th at Taft Middle School there will be a bone marrow drive in my honor in the library at from 11:30 to 3:30. If you can't make it, word is you can go to your local OBI (oklahoma blood institute) or check out marrow.org and see where you can get a simple cheek swab to help save a life. :)
Also, remember SCENTSY orders are still being held in my honor through a sweet angel on earth, Melissa, and her own scentsy page. All proceeds will benefit directly to me and every bit helps. She has marked everything 10% off for this occasion so go on and enjoy a few scents!
Also people have been asking to send donations for miscellaneous things so a PAY PAL account has been set up in my name. I'm still working on those details but as soon as I get them, I will be sure to post it on here.
Words can't express how much everyone near and far....friends and strangers....have been helping me fight this battle. It makes me so happy to check my website and see the overwhelming response of views per entry I make. Also through facebook all the responses I get to what I post and all the love and support I'm getting from such unselfish people.
All of this is going to work out, I know it, my life has been touched by so many people and there is a reason for this. I feel it.
Well, I'm gonna turn on the tube and watch something before I start to cry & freak the doctors out. lol
Happy Tuesday!
God is good, he's so good to me. :)
Kim
So today I predict will be a lazy day...seeing as though i'm awake by 9am and not one doctor has came by to see me - word spreads quickly I'm not a morning person, lol. I just ordered breakfast since I've been thinking about it since 6:30am.
Today I ordered an actual breakfast so we'll see how everything tastes. I told the lady on the phone....okay it might be a big random order, IDK where my taste buds are at. So she said, okay....So i got biscuits and gravy, hashbrowns with ketchup, sausage patty extra well done, frosted flakes and reduced fat milk, and orange juice....her response....that's it?? lol. Well I thought it was a lot.
Anyways, the doctors were concerned with my blood pressure last night because they thought was going to pass out....it got down to 93/49 but I told them I have low blood pressure anyways and since I'm not stressed with much except cancer these days....I'm okay. So they let me off the hook, reviewed some records, and "let me sleep."
Okay well, that's as exciting news as I go so I'm gonna sit in my bed in my room, that BTW Sarah Mae herself came up last night to visit and we rearranged the furniture! It's a bit crowded where I am and I'm still figuring things out but overall, I like it and I can hopefully get through the next three days with a little more ease. :)
Please, please, please, remember that August 30th at Taft Middle School there will be a bone marrow drive in my honor in the library at from 11:30 to 3:30. If you can't make it, word is you can go to your local OBI (oklahoma blood institute) or check out marrow.org and see where you can get a simple cheek swab to help save a life. :)
Also, remember SCENTSY orders are still being held in my honor through a sweet angel on earth, Melissa, and her own scentsy page. All proceeds will benefit directly to me and every bit helps. She has marked everything 10% off for this occasion so go on and enjoy a few scents!
Also people have been asking to send donations for miscellaneous things so a PAY PAL account has been set up in my name. I'm still working on those details but as soon as I get them, I will be sure to post it on here.
Words can't express how much everyone near and far....friends and strangers....have been helping me fight this battle. It makes me so happy to check my website and see the overwhelming response of views per entry I make. Also through facebook all the responses I get to what I post and all the love and support I'm getting from such unselfish people.
All of this is going to work out, I know it, my life has been touched by so many people and there is a reason for this. I feel it.
Well, I'm gonna turn on the tube and watch something before I start to cry & freak the doctors out. lol
Happy Tuesday!
God is good, he's so good to me. :)
Kim
Monday, August 20, 2012
Day 506: Fingers Crossed....
So a little update on today's happenings. My breakfast was good. My counts are down as expected from the chemo and no chemo tonight or tomorrow (thank goodness!). Unfortunately my glucose is high and they may have to regulate my blood sugar with some insulin but they said it's normal for chemo patients to have a high glucose so it's nothing to worry about. What's another shot? I'll have to start my neupogen (sp?) or neulasta shots for a white blood count booster so I'm used to them. no big deal.
My oncologist, came in today on rounds and delivered some good news! She said that I may be able to get out of here by Wednesday or Thursday at the earliest. :) so keep your fingers crossed so I can get the heck out of this hospital for a few days. My bone marrow biopsy is scheduled for the 30th and she seemed hopeful that I could do that at the cancer center as an outpatient!! But it'll depend on the attending oncologist at the time. Hopefully, it all works out. pray for me. I have to get out of here.
Today after my breakfast, I laid around for as long as I could stand it and then I took a nice shower. Once again, it was tiring but I made it through. I got a package from my parents today that had some comfy sweats ....it was perfect because it was nice and chilly in my room and it kept me nice and warm throughout the rest of the day. I also got lots of bling jewelry from my mom to help comfort the hair loss situation (which has yet to happen but today during my shower I noticed some hairs coming out easier than usual).
Then I ate some leftover chili that I had lying around in the refrigerator that put me in just enough of a coma to get about an hour of shut eye.
I also got report from the transplant nurse that I had 3 hopeful GREAT matches out there in the world so that seems to be falling into place perfectly. There is still a bone marrow drive on AUGUST 30th at Taft Middle School and they said it could take about 5 days to be put in the registry and do preliminary testing. So if anyone who is planning to get checked, you could be my bone marrow donor...it would be a rush but they said it's possible! :)
Okay well, I'm going to watch some TV, let this chili settle in my stomach some more and wait for some fabulous visitors to come keep me company! :)
God has been so good to me today and I want to once again thank everyone out there for the constant prayers that keep me going everyday.
Love you all,
Kim
My oncologist, came in today on rounds and delivered some good news! She said that I may be able to get out of here by Wednesday or Thursday at the earliest. :) so keep your fingers crossed so I can get the heck out of this hospital for a few days. My bone marrow biopsy is scheduled for the 30th and she seemed hopeful that I could do that at the cancer center as an outpatient!! But it'll depend on the attending oncologist at the time. Hopefully, it all works out. pray for me. I have to get out of here.
Today after my breakfast, I laid around for as long as I could stand it and then I took a nice shower. Once again, it was tiring but I made it through. I got a package from my parents today that had some comfy sweats ....it was perfect because it was nice and chilly in my room and it kept me nice and warm throughout the rest of the day. I also got lots of bling jewelry from my mom to help comfort the hair loss situation (which has yet to happen but today during my shower I noticed some hairs coming out easier than usual).
Then I ate some leftover chili that I had lying around in the refrigerator that put me in just enough of a coma to get about an hour of shut eye.
I also got report from the transplant nurse that I had 3 hopeful GREAT matches out there in the world so that seems to be falling into place perfectly. There is still a bone marrow drive on AUGUST 30th at Taft Middle School and they said it could take about 5 days to be put in the registry and do preliminary testing. So if anyone who is planning to get checked, you could be my bone marrow donor...it would be a rush but they said it's possible! :)
Okay well, I'm going to watch some TV, let this chili settle in my stomach some more and wait for some fabulous visitors to come keep me company! :)
God has been so good to me today and I want to once again thank everyone out there for the constant prayers that keep me going everyday.
Love you all,
Kim
Day 506: A little more pleasant today...
WOW, I had no idea how much chemo actually took a toll on my body. Yesterday, I was almost miserable tired and now...i've been up for like 30 minutes! Which reminds me....last night I must've been delirious (again) because I totally didn't have chemo last night. It was like 9:30 and they gave me my steriods and I was like, what happened to the chemo?? The nurse was like...it's been 5 doses already silly!
So I was like...woo hoo, give me my ambien! It was nice. And my sleep was so much better. I actually woke up and was talking to the doctors this morning and I noticed that I"m a lot more pleasant when I don't have that junk in me. lol. Who would've thought. I asked my doctors about their day, cracked a joke or two, and gave them a full report of why I was so awful the past few days. You could tell that they liked me today. lol.
Well, I think that my hair is starting to fall out. It doesn't seem as bad yet but I definitely want to get rid of it because having bed head sucks with short hair and my sister got me some cool new BLING earrings that will look perfect with my baseball hat and possibly a scarf if I'm up for it.
Right now, i'm awake and looking for something to watch on TV. I might feel so good to do a little online shopping....okay maybe not yet. that is dangerous! I ordered a hoodie from nike.com and I was soooo tempted to buy jogging shoes but I was like....what the heck do you need jogging shoes for? lol.
Last night I had a baked potato soup craving and God must've known because a nurse came in and said, Hey Kim a nurse brought potato soup, do you want me to get you a cup of it? Although it was kinda late, of course I said yes and it was DELICIOUS!!
I didn't get to make my video for my students last night like I wanted to because I just felt horrible. So today I feel bad but I think it'll keep them on their toes. I hope they're excited for it. IDK what I"m going to say but I'll figure that out, I'm a teacher, I can wing anything! :)
Well, my food is here and I'm STARVING (I blame the steroids) I just hope it tastes good...fingers crossed.
I'll write more later,
kim
p.s. HUGE CONGRATULATIONS to my friend Michelle and her new baby Ava. It's been a much anticipated summer and I bet that little girl is going to come out brown because of all the sun we got all summer! :)
So I was like...woo hoo, give me my ambien! It was nice. And my sleep was so much better. I actually woke up and was talking to the doctors this morning and I noticed that I"m a lot more pleasant when I don't have that junk in me. lol. Who would've thought. I asked my doctors about their day, cracked a joke or two, and gave them a full report of why I was so awful the past few days. You could tell that they liked me today. lol.
Well, I think that my hair is starting to fall out. It doesn't seem as bad yet but I definitely want to get rid of it because having bed head sucks with short hair and my sister got me some cool new BLING earrings that will look perfect with my baseball hat and possibly a scarf if I'm up for it.
Right now, i'm awake and looking for something to watch on TV. I might feel so good to do a little online shopping....okay maybe not yet. that is dangerous! I ordered a hoodie from nike.com and I was soooo tempted to buy jogging shoes but I was like....what the heck do you need jogging shoes for? lol.
Last night I had a baked potato soup craving and God must've known because a nurse came in and said, Hey Kim a nurse brought potato soup, do you want me to get you a cup of it? Although it was kinda late, of course I said yes and it was DELICIOUS!!
I didn't get to make my video for my students last night like I wanted to because I just felt horrible. So today I feel bad but I think it'll keep them on their toes. I hope they're excited for it. IDK what I"m going to say but I'll figure that out, I'm a teacher, I can wing anything! :)
Well, my food is here and I'm STARVING (I blame the steroids) I just hope it tastes good...fingers crossed.
I'll write more later,
kim
p.s. HUGE CONGRATULATIONS to my friend Michelle and her new baby Ava. It's been a much anticipated summer and I bet that little girl is going to come out brown because of all the sun we got all summer! :)
Sunday, August 19, 2012
Day 505: Sunday's are meant for rest...
Today my oncology team let me sleep. I didn't end up going to sleep until 4am and it was rough. I just couldn't go to sleep, no matter what I tried. When I heard them come in this morning, I heard my doctor say just let her sleep, I'm sure there have been no changes.
It was nice. So I slept until about 12:30 and got up and was HUNGRY. I ordered some breakfast (a bagel) and lunch (hamburger) and of course a fresh fruit plate. Which I'm not sure why they haven't changed my diet because according to my latest blood counts, my white blood count is at a 1. hmm.
My red blood count is at a 2.4 (normal is 3.9-5.1) and my platelets are sitting low at a 14 (normal is about 140). I'm showing signs of bruises but nothing too crazy....yet.
I didn't have visitors today nor did I feel like visitors. I just felt like laying in bed all day and that's what I did. It's 9pm and I'm already ready for bed but they haven't even started my pre-meds yet. I guess they're running behind. Which is fine by me because I ate a whole can of chicken soup about an hour ago and I was afraid my nausea would be strong. But nothing yet. I've been trying to flush with water as much as possible but that CHEMO taste is just awful.
Anyways, not much else to report except chemo feels like it's finally taking a toll on my body. But it's day 5 and I have 3 days of rest after this before my next bag. I've been through tougher, I can do it. Well anyways, it's a short blog tonight, I'm ready to go to sleep.
Thanks for reading. Sorry it was boring. lol.
Good night,
kim
It was nice. So I slept until about 12:30 and got up and was HUNGRY. I ordered some breakfast (a bagel) and lunch (hamburger) and of course a fresh fruit plate. Which I'm not sure why they haven't changed my diet because according to my latest blood counts, my white blood count is at a 1. hmm.
My red blood count is at a 2.4 (normal is 3.9-5.1) and my platelets are sitting low at a 14 (normal is about 140). I'm showing signs of bruises but nothing too crazy....yet.
I didn't have visitors today nor did I feel like visitors. I just felt like laying in bed all day and that's what I did. It's 9pm and I'm already ready for bed but they haven't even started my pre-meds yet. I guess they're running behind. Which is fine by me because I ate a whole can of chicken soup about an hour ago and I was afraid my nausea would be strong. But nothing yet. I've been trying to flush with water as much as possible but that CHEMO taste is just awful.
Anyways, not much else to report except chemo feels like it's finally taking a toll on my body. But it's day 5 and I have 3 days of rest after this before my next bag. I've been through tougher, I can do it. Well anyways, it's a short blog tonight, I'm ready to go to sleep.
Thanks for reading. Sorry it was boring. lol.
Good night,
kim
Saturday, August 18, 2012
Day 504: Cold, Lazy Saturday
Well it's the weekend...it's not as exciting to say in my situation. I just wish I could get out, go shopping, grab some dinner, or just lay in my own bed.
It's cold in the hospital and very quiet today. Which makes sense because most of the people on chemo treatments come in on Monday and leave on Friday. That used to be me, I'm jealous. I had a neighbor come in today and ask how long I've been here. Made me feel helpful I knew the ins and outs of this place but still a little sad that I'm "stuck" here.
I got started early today (11am) with some visitors...Debbie and my sister came first.Debbie brought some cards from work and a little present from the "coaching staff" at Taft. They got me a little "FLOWER POWER" canvas picture that goes with my room so well. I guess they figured since I'll be prone to infection sooner than later (no fresh flowers or fruit) they would give me a little something to keep the brightness in my room. VERY thoughtful of them. I also go a card from the girls and boys cross country team and it was sweet as well. I'm so sad I won't be able to coach cross country because i know i have girls will will totally kick some arse...and boys too of course (especially since I'm making all my soccer boys do XC as well). It was a good surprise that put me in a pretty good Saturday mood, just what I needed. Anyways, I took a shower today and I just love shower days, I feel so much cleaner afterwards and sheets always get changed. I try to save up some energy because showers are TIRING, you people don't even know.
Later, my regular oncologist came today on rounds and it just felt comfortable having her in on rounds. Small...I know but it feels good to have familiar faces around.
After rounds, I ventured down to the gift shop with my sister and raided the snacks and I could tell I was getting winded while actually walking. My muscle mass in my legs have significantly went down and luckily my liver enzymes and stuff have went down as well (the whole reason I even came into the hospital). Not really sure about my spleen but I assume it's good too because they haven't said anything about it.
As far as my symptoms go, during the day I'm fine. I sleep a lot (mainly because I don't get sleep at night) and just kinda hang out. Although I will say, last night was BY FAR the best night of sleep I've gotten. My awesome nurses got my ambien dose up and as soon as I took it I was down for the count. I don't remember getting my vitals taken, my temperature, my morning lab drawls....heavenly. I slept all the way until doctor rounds and I barely remember the med students and residents who came in. But like I said, their questions are routine and I usually answer them with a pillow or my sheets over my head. lol.
I usually start to feel the "chemo" side effects during the actual chemo treatments, like I said before. I get real anxious and restless when the steroids go in and I found out if I eat after 5 or somewhere around there I get pretty bad nausea as well as a headache. But the beauty of my awesome nurses and the hospital, all I have to do is ask for something to help and BAM, it's here. Scary, yes, because I don't want to rely so much on medication but chemo is rough.
Anyways, after my trip downstairs, I came back up and my sister left for the day (it gets boring after about an hour with me) and two of my first year students came up, Destiny and Laurie. They're driving now and they're juniors and it just made me feel "old." But needless to say, we talked as if they were still in my 8th grade classroom. Bonds like that and when people, especially students, do one extra step for me, an old teacher they could probably just left and been done with me after 8th grade, makes it all worthwhile and I don't think people get that unless you've had that connection with someone.
So the girls stayed for a bit and we talked about life and treatments and whatever else these kids are talking about these days and it was good. After they left I took about a 2 hour nap because I was tired and woke up to a phone call from my "roommate" (in quotes because we've only lived together for like 3 days before all this mess) asking what kind of shorts to buy from academy since I asked her to. She also bought the Hunger Games movie and had plans of coming up to watch it with me. Then just as I was waking up and functioning again, I got a much anticipated visit from one of my 7th grade teacher teammate....one of our English teachers, Cathy! Not only did I want to hear more about my students I had for 5 days, but also because she brought me HOMEMADE chili that I had been talking about ALL DAY long to my nurses. She also brought me a few movies, and lots of snacks to satisfy late night hunger and during the day snackage. :) She stayed for a while and then was joined by another fellow teacher, tara!
A few days ago when I found out I'd have another PICC line in my arm, I immediately got a hold of Tara and out her on sewing duty so she could make some FABULOUS PICC line covers...then I got the idea that she could make me an actual hospital gown that would fit me (most of them are HUGE) and I would be comfortable in. So she stopped by the fabric store and picked out some beautiful BOLD fabric and I just know she'll be working away to help me out. She stayed for a while after Cathy left and Emily, the roomie, came as well and we sat and chit chatted away.
When Tara left, Emily and I had plans of taking over the family room and watching our Hunger Games movie...and we did. It was really awkward because there were people in there just sitting around not watching the TV or anything, some were playing cards, one was reading, and a few just drinking coffee. So no big deal, we hooked up the DVD and was watching. My 1st bag of chemo went though and I had to go back to my room to get hooked up to my second bag and when I came back everyone was around the TV on the couches watching too. So if anything, I'm glad we provided some entertainment. They must've been bored. lol. It was kind of annoying for a while because people came in during the middle of it and they were all talking about what was going on and why little kids were fighting....weird but we got through it. Then after it was over it was really awkward because we just took the DVD player and left and they were all waiting like we were a movie theater. lol.
But overall it was a good Saturday. I remember always looking forward to Saturday's because people can actually come out and visit and I like that. It also felt good getting out of my room for a couple hours even though I was just laying on a couch anyway. This bed is just so uncomfortable.
Tomorrow I have plans of making a mini video for my students at school telling them how much I miss them and that they should be good for their short term replacement teacher. I thought I should get this in before I lose my hair again so that way it will be a little easier transition for them because when I do go back to school, they'll understand the "process" of me wearing wigs and they won't be so "shocked" if indeed I only feel like wearing a baseball hat to school. And I always think about my students whose lives have already been effected by cancer. You just don't know people's stories and what they've been through. And even since day 1, I just know someone out there whether I know them or not, will be directly effected by this, by me.
Okay well, it's 1 am now and my ambien is starting to kick in and I think my chemo bag is just about done so it's about that time.
Remember AUGUST 30th....Bone Marrow testing at TAFT MIDDLE SCHOOL from 11:30- 3:30. Even if you can't save my life, you could always help someone else out.
Also up until the 24th of this month, a good HS friend's scentsy sales will go towards me and every little bit will help. She's wonderful and if you have questions, she can give you the details because I get confused looking at all that, but one day, I'll get it. :)
https://melkaiser.scentsy.us/Scentsy/Home
Well, I hope everyone has a great weekend and just remember everyone is fighting a battle, so be nice! :)
Much love,
kim
It's cold in the hospital and very quiet today. Which makes sense because most of the people on chemo treatments come in on Monday and leave on Friday. That used to be me, I'm jealous. I had a neighbor come in today and ask how long I've been here. Made me feel helpful I knew the ins and outs of this place but still a little sad that I'm "stuck" here.
I got started early today (11am) with some visitors...Debbie and my sister came first.Debbie brought some cards from work and a little present from the "coaching staff" at Taft. They got me a little "FLOWER POWER" canvas picture that goes with my room so well. I guess they figured since I'll be prone to infection sooner than later (no fresh flowers or fruit) they would give me a little something to keep the brightness in my room. VERY thoughtful of them. I also go a card from the girls and boys cross country team and it was sweet as well. I'm so sad I won't be able to coach cross country because i know i have girls will will totally kick some arse...and boys too of course (especially since I'm making all my soccer boys do XC as well). It was a good surprise that put me in a pretty good Saturday mood, just what I needed. Anyways, I took a shower today and I just love shower days, I feel so much cleaner afterwards and sheets always get changed. I try to save up some energy because showers are TIRING, you people don't even know.
Later, my regular oncologist came today on rounds and it just felt comfortable having her in on rounds. Small...I know but it feels good to have familiar faces around.
After rounds, I ventured down to the gift shop with my sister and raided the snacks and I could tell I was getting winded while actually walking. My muscle mass in my legs have significantly went down and luckily my liver enzymes and stuff have went down as well (the whole reason I even came into the hospital). Not really sure about my spleen but I assume it's good too because they haven't said anything about it.
As far as my symptoms go, during the day I'm fine. I sleep a lot (mainly because I don't get sleep at night) and just kinda hang out. Although I will say, last night was BY FAR the best night of sleep I've gotten. My awesome nurses got my ambien dose up and as soon as I took it I was down for the count. I don't remember getting my vitals taken, my temperature, my morning lab drawls....heavenly. I slept all the way until doctor rounds and I barely remember the med students and residents who came in. But like I said, their questions are routine and I usually answer them with a pillow or my sheets over my head. lol.
I usually start to feel the "chemo" side effects during the actual chemo treatments, like I said before. I get real anxious and restless when the steroids go in and I found out if I eat after 5 or somewhere around there I get pretty bad nausea as well as a headache. But the beauty of my awesome nurses and the hospital, all I have to do is ask for something to help and BAM, it's here. Scary, yes, because I don't want to rely so much on medication but chemo is rough.
Anyways, after my trip downstairs, I came back up and my sister left for the day (it gets boring after about an hour with me) and two of my first year students came up, Destiny and Laurie. They're driving now and they're juniors and it just made me feel "old." But needless to say, we talked as if they were still in my 8th grade classroom. Bonds like that and when people, especially students, do one extra step for me, an old teacher they could probably just left and been done with me after 8th grade, makes it all worthwhile and I don't think people get that unless you've had that connection with someone.
So the girls stayed for a bit and we talked about life and treatments and whatever else these kids are talking about these days and it was good. After they left I took about a 2 hour nap because I was tired and woke up to a phone call from my "roommate" (in quotes because we've only lived together for like 3 days before all this mess) asking what kind of shorts to buy from academy since I asked her to. She also bought the Hunger Games movie and had plans of coming up to watch it with me. Then just as I was waking up and functioning again, I got a much anticipated visit from one of my 7th grade teacher teammate....one of our English teachers, Cathy! Not only did I want to hear more about my students I had for 5 days, but also because she brought me HOMEMADE chili that I had been talking about ALL DAY long to my nurses. She also brought me a few movies, and lots of snacks to satisfy late night hunger and during the day snackage. :) She stayed for a while and then was joined by another fellow teacher, tara!
A few days ago when I found out I'd have another PICC line in my arm, I immediately got a hold of Tara and out her on sewing duty so she could make some FABULOUS PICC line covers...then I got the idea that she could make me an actual hospital gown that would fit me (most of them are HUGE) and I would be comfortable in. So she stopped by the fabric store and picked out some beautiful BOLD fabric and I just know she'll be working away to help me out. She stayed for a while after Cathy left and Emily, the roomie, came as well and we sat and chit chatted away.
When Tara left, Emily and I had plans of taking over the family room and watching our Hunger Games movie...and we did. It was really awkward because there were people in there just sitting around not watching the TV or anything, some were playing cards, one was reading, and a few just drinking coffee. So no big deal, we hooked up the DVD and was watching. My 1st bag of chemo went though and I had to go back to my room to get hooked up to my second bag and when I came back everyone was around the TV on the couches watching too. So if anything, I'm glad we provided some entertainment. They must've been bored. lol. It was kind of annoying for a while because people came in during the middle of it and they were all talking about what was going on and why little kids were fighting....weird but we got through it. Then after it was over it was really awkward because we just took the DVD player and left and they were all waiting like we were a movie theater. lol.
But overall it was a good Saturday. I remember always looking forward to Saturday's because people can actually come out and visit and I like that. It also felt good getting out of my room for a couple hours even though I was just laying on a couch anyway. This bed is just so uncomfortable.
Tomorrow I have plans of making a mini video for my students at school telling them how much I miss them and that they should be good for their short term replacement teacher. I thought I should get this in before I lose my hair again so that way it will be a little easier transition for them because when I do go back to school, they'll understand the "process" of me wearing wigs and they won't be so "shocked" if indeed I only feel like wearing a baseball hat to school. And I always think about my students whose lives have already been effected by cancer. You just don't know people's stories and what they've been through. And even since day 1, I just know someone out there whether I know them or not, will be directly effected by this, by me.
Okay well, it's 1 am now and my ambien is starting to kick in and I think my chemo bag is just about done so it's about that time.
Remember AUGUST 30th....Bone Marrow testing at TAFT MIDDLE SCHOOL from 11:30- 3:30. Even if you can't save my life, you could always help someone else out.
Also up until the 24th of this month, a good HS friend's scentsy sales will go towards me and every little bit will help. She's wonderful and if you have questions, she can give you the details because I get confused looking at all that, but one day, I'll get it. :)
https://melkaiser.scentsy.us/Scentsy/Home
Well, I hope everyone has a great weekend and just remember everyone is fighting a battle, so be nice! :)
Much love,
kim
Friday, August 17, 2012
Day 503: Fighting Through The Bad Days...
I don't know what I was thinking when I was writing the description for this blog. I was all types of confused with misspellings and the wrong dates. I was obviously confused and upset. Anyways, I fixed it and right next to the date is the amount of views I have already received. 461. That just brings tears to my eyes knowing that I have such a strong support system with those I came into contact from elementary school, middle school, high school, college, ONE college class, through a friend, and people who don't even know me.
Anyways, last night was a rough night. I started my 3rd day of my chemo drugs and I was so restless/anxious and feeling sick. I couldn't get comfortable or anything. I even requested some ambien to help put me into sleep but that did ABSOLUTELY nothing except....well it did nothing. Then when my nurse went to call the doctor on call to request another one, she had to speak to her "superiors" and nothing ever came back. I assume I fell asleep around 4 because an hour later a nurse or tech came in to get vitals, blood drawls, and change my IV. Then doctors came in and blah, blah, blah.
Whenever I can't sleep I usually sleep the other way (foot where a head is suppose to be, and head where foot is suppose to be) and it always throws everyone off because different just doesn't fly around here.
Vitals were just taken....blood pressure is 112/61...temperature was 97.1 and all is good. I'm going to ask for my blood counts when my nurse comes back but I imagine they're low. It's harder to get up and get around but today's goal is to venture down the hall and do some laundry (they gave me the code to the laundry room yes!!)
I'm also ready to shave my head. My hair is just getting annoying and its always messy...and I don't even have big BLING earrings to balance it out, yet. The first time I went through a hair loss it was hard. I always said it was an IMAGE i didn't want to show because people associate a girl with no hair with cancer. But i love my wigs now and I'm over crying over my hair so I'm gonna chop it off...give myself a mowhawk, write my name in it...idk.
In other news, don't forget that you can donate blood through Oklahoma Blood Institute in my name and I will receive credits toward my bill for each donation in my name. It doesn't matter what blood type you are just get out and donate. :) Also, remember AUGUST 30th at Taft Middle School the wonderful teachers there have set up a bone marrow drive to help either me find a GREAT match (I can't do this again) or help someone else. Once again, credits will go towards my bill and everything and anything is helpful. Please spread the word.
More details to come....
And one more thing....I have such an amazing support group that an old high school friend, Melissa, has put together a scentsy party on my behalf and ALL proceeds from the sales will go directly to me and my hospital bills. She's so wonderful for doing this for me. Scentsy's are great gifts and make your house smell AMAZING. and if you don't want it, i'll take it! :)
Here is a link to her website where you will see her pretty little face and you can go in and order through the "Team Kim" link of the left. I'm about to go buy my own for my hospital room...i hate the smell of chemo. :)
https://melkaiser.scentsy.us/Scentsy/Home
Okay well breakfast is here and I have about 10 minutes until the smell will make me sick.
Thanks for everything, I love you all.
Anyways, last night was a rough night. I started my 3rd day of my chemo drugs and I was so restless/anxious and feeling sick. I couldn't get comfortable or anything. I even requested some ambien to help put me into sleep but that did ABSOLUTELY nothing except....well it did nothing. Then when my nurse went to call the doctor on call to request another one, she had to speak to her "superiors" and nothing ever came back. I assume I fell asleep around 4 because an hour later a nurse or tech came in to get vitals, blood drawls, and change my IV. Then doctors came in and blah, blah, blah.
Whenever I can't sleep I usually sleep the other way (foot where a head is suppose to be, and head where foot is suppose to be) and it always throws everyone off because different just doesn't fly around here.
Vitals were just taken....blood pressure is 112/61...temperature was 97.1 and all is good. I'm going to ask for my blood counts when my nurse comes back but I imagine they're low. It's harder to get up and get around but today's goal is to venture down the hall and do some laundry (they gave me the code to the laundry room yes!!)
I'm also ready to shave my head. My hair is just getting annoying and its always messy...and I don't even have big BLING earrings to balance it out, yet. The first time I went through a hair loss it was hard. I always said it was an IMAGE i didn't want to show because people associate a girl with no hair with cancer. But i love my wigs now and I'm over crying over my hair so I'm gonna chop it off...give myself a mowhawk, write my name in it...idk.
In other news, don't forget that you can donate blood through Oklahoma Blood Institute in my name and I will receive credits toward my bill for each donation in my name. It doesn't matter what blood type you are just get out and donate. :) Also, remember AUGUST 30th at Taft Middle School the wonderful teachers there have set up a bone marrow drive to help either me find a GREAT match (I can't do this again) or help someone else. Once again, credits will go towards my bill and everything and anything is helpful. Please spread the word.
More details to come....
And one more thing....I have such an amazing support group that an old high school friend, Melissa, has put together a scentsy party on my behalf and ALL proceeds from the sales will go directly to me and my hospital bills. She's so wonderful for doing this for me. Scentsy's are great gifts and make your house smell AMAZING. and if you don't want it, i'll take it! :)
Here is a link to her website where you will see her pretty little face and you can go in and order through the "Team Kim" link of the left. I'm about to go buy my own for my hospital room...i hate the smell of chemo. :)
https://melkaiser.scentsy.us/Scentsy/Home
Okay well breakfast is here and I have about 10 minutes until the smell will make me sick.
Thanks for everything, I love you all.
Thursday, August 16, 2012
Day 502: I'll Take Care Of You....
I still can't believe I'm here.
I still can't believe that I have cancer. Again.
Like, what are the odds?
I wish I could have the same attitude and "not care" because I can get through this.
But the second go around is always harder. I don't want to lie, I have doubts.
Is my body strong enough to endure the beating again. I felt like I was still recovering.
ugh.
Anyways, sorry for the "late" blog update. I was TIRED this morning. I didn't get a very good sleep last night. I start my 1st 2 hour bag of chemo at 8:30 and finish it at 10:30. Then I switch to another 2 hour bag finishing up around a little past midnight depending how on top of their game my nurse is that night. So far, I've loved all my nurses....except one. She just didn't get my vibe but what can you do right? So basically, I slept all morning between the FOUR different doctor visits. I laid in bed as they talked to me with my sheet over my head because I just wasn't in the mood. lol. Then my nurse came back and I was ready to shower.
Showering is getting a little more difficult mainly because my hemoglobin is slowly decreasing everyday. I got my sheets changed to my bright pink ones and I like them because they're bright. Good thing it's dorm season. I got to get my paws on some zebra stripes now. :)
Well, the chemo taste is slowly creeping back into my mouth. Water is starting to taste funny and it's just an obnoxiously dry bland taste I can't get rid of. I'm trying to keep my mouth clean so I can avoid mouth sores at all costs but those are inevitable. And they suck.
My latest project....which if ANYONE can help me with this....is I'm trying to find someone (professional) to come in a give me a PEDICURE!! I usually get one before I go into the hospital because everyone looks at feet here and not only am I due for one...like yesterday, but I have to have one. Especially if I'm in here for 2 more weeks! :( So for all of you who often go to a nail salon please ask for me. And as an added bonus, I'll even pay for you to get one with me....because who goes to get pedicures alone? :)
Today I woke up wanting to go to school and teach my kids. I guess it's an urge I still have somewhere deep down in me. Kids are just so great. They have the funniest things to say at the most inappropriate times. And at the time, they drive you insane but sometimes its all you need to make your day. Here around adults....it's lame.
Okay one last thing before my hamburger I ordered 40 minutes ago gets here....The awesomest middle school counselor on the planet Ms. Curry has set up a Bone Marrow Matching Site where EVERYONE and ANYONE can get tested to see if they would be a match for me to get my transplant!!
We're going to hopefully have posters, signs (hopefully purple), and EVERYTHING set up at TAFT MIDDLE SCHOOL (the best middle school ever) on August 30, 2012 from 11:30 - 3:30 pm.
It should be a quick in and out procedure.....called a CHEEK SWAB. :) So no blood draw just to get tested. And if you're not a match for me, maybe you'll be a match for someone else. More details will follow but mark it in your calendars.....August 30th. :)
Also, people have been asking about visiting me and by all means come on! I don't do anything except sit in my room and watch people walk up and down the hall. I would prefer a text or message of some sort before you come because some days I'll feel like having contact with no one.
Also if you are still interested in donating blood in my name, make sure it goes through Oklahoma Blood Institute so I can get some credits to go towards my bill. Word is with a transplant, I'll need blood transfusions daily. :( If you need more information let me know and I'll be more than willing to share. :)
Okay well, I'm going to get myself up and use the restroom (TMI??) since I haven't went 100 times today already.
Have a good day and I'll write more later.
xoxo
Kim
I still can't believe that I have cancer. Again.
Like, what are the odds?
I wish I could have the same attitude and "not care" because I can get through this.
But the second go around is always harder. I don't want to lie, I have doubts.
Is my body strong enough to endure the beating again. I felt like I was still recovering.
ugh.
Anyways, sorry for the "late" blog update. I was TIRED this morning. I didn't get a very good sleep last night. I start my 1st 2 hour bag of chemo at 8:30 and finish it at 10:30. Then I switch to another 2 hour bag finishing up around a little past midnight depending how on top of their game my nurse is that night. So far, I've loved all my nurses....except one. She just didn't get my vibe but what can you do right? So basically, I slept all morning between the FOUR different doctor visits. I laid in bed as they talked to me with my sheet over my head because I just wasn't in the mood. lol. Then my nurse came back and I was ready to shower.
Showering is getting a little more difficult mainly because my hemoglobin is slowly decreasing everyday. I got my sheets changed to my bright pink ones and I like them because they're bright. Good thing it's dorm season. I got to get my paws on some zebra stripes now. :)
Well, the chemo taste is slowly creeping back into my mouth. Water is starting to taste funny and it's just an obnoxiously dry bland taste I can't get rid of. I'm trying to keep my mouth clean so I can avoid mouth sores at all costs but those are inevitable. And they suck.
My latest project....which if ANYONE can help me with this....is I'm trying to find someone (professional) to come in a give me a PEDICURE!! I usually get one before I go into the hospital because everyone looks at feet here and not only am I due for one...like yesterday, but I have to have one. Especially if I'm in here for 2 more weeks! :( So for all of you who often go to a nail salon please ask for me. And as an added bonus, I'll even pay for you to get one with me....because who goes to get pedicures alone? :)
Today I woke up wanting to go to school and teach my kids. I guess it's an urge I still have somewhere deep down in me. Kids are just so great. They have the funniest things to say at the most inappropriate times. And at the time, they drive you insane but sometimes its all you need to make your day. Here around adults....it's lame.
Okay one last thing before my hamburger I ordered 40 minutes ago gets here....The awesomest middle school counselor on the planet Ms. Curry has set up a Bone Marrow Matching Site where EVERYONE and ANYONE can get tested to see if they would be a match for me to get my transplant!!
We're going to hopefully have posters, signs (hopefully purple), and EVERYTHING set up at TAFT MIDDLE SCHOOL (the best middle school ever) on August 30, 2012 from 11:30 - 3:30 pm.
It should be a quick in and out procedure.....called a CHEEK SWAB. :) So no blood draw just to get tested. And if you're not a match for me, maybe you'll be a match for someone else. More details will follow but mark it in your calendars.....August 30th. :)
Also, people have been asking about visiting me and by all means come on! I don't do anything except sit in my room and watch people walk up and down the hall. I would prefer a text or message of some sort before you come because some days I'll feel like having contact with no one.
Also if you are still interested in donating blood in my name, make sure it goes through Oklahoma Blood Institute so I can get some credits to go towards my bill. Word is with a transplant, I'll need blood transfusions daily. :( If you need more information let me know and I'll be more than willing to share. :)
Okay well, I'm going to get myself up and use the restroom (TMI??) since I haven't went 100 times today already.
Have a good day and I'll write more later.
xoxo
Kim
Wednesday, August 15, 2012
Day 501: I survived yesterday...I can survive today
Well, here I am again.
I relapsed.
And honestly, it was 100x's worse this time hearing the news
that the Leukemia came back than actually sitting in the doctor's office for
the first time finding out that I had cancer.
And just the way it was told to me wasn't exactly the best
choice.
Since OU is a teaching hospital, I have a medical
"team" that consists of students, residents, fellows, and attending
doctors, etc. So in the mornings, I usually see the medical students first,
then the residents, then everyone else. Well the first kid who came in here
said, well Miss Begay, I have good news for you concerning your biopsy....or so
I thought. Maybe I wanted to hear those words so bad come out of his mouth, I
made it up, but I swear that's what I hear. Then he said, unfortunately the
Leukemia came back. The rest of what he said flew out the window and I labeled
it unimportant because everything is repeated 50 times again in each ear before
anything is ever done so I could care less. By this time, the tears are
uncontrollably rolling down my face and my body is actually twitching while I
cry...no noise yet but i felt it coming. So I probably made the doctor
uncomfortable because he was just staring at me saying whatever he was saying
and I was nodding and trying to control myself but it was hopeless. So then he
said, I'm sorry about the news, and quickly walked out.
So then, the OU student on my case came in and I was crying
my eyes out and when he came in I quickly wiped my face and said Good Morning!
He looked puzzled and was asking if everything was alright. I said no and told
him that they said the Leukemia came back. And he was just ask shocked as I
was, lol. He was asking who said that and eventually he said, "I didn't
hear about this yet so I would wait until the official word comes from the
team." Naturally, this gave me hope. Only to be shut down 5 minutes later
when the team came back and confirmed my relapse.
Once again, I managed to make everyone uncomfortable in the
room by hysterically crying and no one wanted to look at me and I even got a
few tears from the residents on my case. After the news and explanation of what
was next, a few doctors stayed behind and said I'm so sorry Miss Begay and
rubbed my leg or foot (sounds weird) but it was nice to know that the doctors
still have not lost the idea that patients are human and we do have feelings. -
Which is a WHOLE another story.
Anyways, the main doctor offered to get me some anxiety
pills to calm myself down because I guess I was a complete MESS....and if you
know anything about me, crying or showing any type of emotion is just NOT MY
THING. So when I actually do, it has to be for a legit reason. After they left,
my sister was in the room with me and she asked me, "what's the hardest
part about this." and I'm glad she asked me....
because I didn't really think about that. Now of course a kajillion
things are going through my head but the main thing that kept flashing by
was....I don't want to feel like I did during my last chemotherapy round, I was
always tired, a little sick, and just overall yucky. I also kept thinking about
work and how it just started. All my 7th graders and how they're without a math
teacher. How am I going to afford so many sick days and school just started.
Are people going to understand that I want to be at work and if I could, I
really would. I enjoy working (no matter how much I complain) and putting forth
the extra mile....but two years in a row?? No child deserves missing out on
having math. :(
But I can't do anything....work vs. life.
no competition.
So anyways, I sat around and cried for a bit then my sister
offered to go to Wal-Mart for me and I asked her to pick up some new bed
sheets....these ugly white hospital sheets had to GO...and replaced them with
leopard sheets, she got me a zebra print luggage to tote my stuff around,
popcorn for a somewhat healthy snack so when my salt cravings come around, I'll
be prepared, and miscellaneous shower items I didn't bring because I didn't
think I would be here for 3 weeks. New things always make me feel better so I
cleared some tears. Then I find out that on day 1 of all of this not only do I
find out I had cancer AGAIN....but also that I will have a PICC line put in (it
hurts) and also I would be having my first intrathecal chemo through my spinal
cord....which by far has to be the worst thing ever if you have a doctor who is
inexperienced. For my faithful followers, remember last year when I had the guy
who missed a zillion times and still didn't get it?? Well I'm still having
nerve pains every once in a while.... especially if I do a lot of jumping when
I exercise (box jumps, toe taps on a box, lateral jumps, etc.). So of course,
naturally, I questioned the doctor who was doing it and grilling them on how
many have been successful, how many he has done by himself 100%, etc. For those
who are undergoing stuff like this....don't be afraid to ASK these type of
questions, it may sound rude, but it’s your body not theirs.
Before the PICC line nurse came in to give me new central
line, I took an Ativan (for anxiety) and hopped in the shower to give myself
one last good scrub before I would be lying in bed for a few days. While the
nurse was prepping for the line, I started to feel....less stressed and happier,
lol. It was WONDERFUL, like all the feelings of anger and sadness just went
away in la la land. I was relaxed. The procedure itself wasn't too bad after
the two shorts of lido cane and my happy pill....but then came the spinal tap.
It wasn't too bad but I definitely freaked the resident out because the senior
attending had to finish the job because they were poking around where it wasn't
numb and I was probably crying. Lol.
So after that procedure, it was chemo time. That’s right, a
diagnosis and chemo day 1 on the same day….could this day get any worse right?!
The chemotherapy regimen will consist of 5 days of two
different types of medication. The first type of chemo is called Etoposide and
the second is called Clofarabine. Both are given through my IV and both made me
sick last night. Not throwing up sick (I’m sure that will come later) but more
just nauseous like I wanted to throw up but I was just lazy so I endured the
pain. Usually, I just go to sleep for these types of side effects and tough it
out but something tells me this round of chemo is going to get the best of me.:(
So I’ll do these two chemo types for 5 days straight and then rest on day 6, 7,
and 8. Then on day 9, they’ll give me a harsher drug called Asparaginase. Yuck…sounds
like asparagus. Lol. Apparently from what I hear, this last type of chemo is
the worst of the three so by day 12 I should be out of it. L Not looking forward to
that. I could already tell a difference last night in the chemo compared to the
HyperCVAD series most ALL patients go through during their first round of
chemo.
So aside from all my day 1 crying episodes, I let some
people know about my relapse. I told my work people, close friends, and a few
others who would be more directly affected than others on my condition. It’s
always hard telling people and explaining to people what is going on without
them completely cutting them out of my life, because that isn’t what I want. I
want people to know that I’m still me. I may look different, but underneath it
all…I’m me. And that’s what is so hard about all of this. It’s like every time
I went through this, I have to start over and explain myself over and over
again. And when I don’t explain myself, I feel guilty for not being honest. Oh
well, I guess this is God’s way of keeping those who don’t matter in my life,
it’s already precious enough, I don’t need clutter getting in my way right?
So speaking of friends, some work friends came up last night
and ordered pizza, brought their happy faces and we watched a movie together.
We were all tired but after my awful day, I felt better in the presence of
people I really do care about. I asked each of them to come and didn’t expect
them all to show and it made me feel good that they did. I wish I could
surround myself with more people but people are busy and I get that.
Hmmm…okay so that was yesterday….today, the doctors came in
after a restless night I had, and seemed hopeful about my transplant….WHAT?! sorry
forgot to mention my full chemo regimen…..
Okay after my 9 days of chemo, I’ll recover for about 14
days (like before) in the hospital then I will have another bone marrow biopsy
performed to check the status of the cancer. If they find cancer….I’ll do
another round of chemo or basically until remission is achieved. Then, I’ll
recover and go straight for a transplant via a bone marrow match somewhere in
this world, or do a blood cord transplant. (yuck). So right now, were praying
for remission after one round (especially since cancer was caught early) and a
transplant to immediately follow. A transplant will hospitalize me for 6 weeks…more
details to follow.
Alright so that’s pretty much all for today. They have me
hooked up to fluids to continuously flush my liver and it’s annoying. I have to
use the restroom every hour. On the brighter side, my liver and spleen (which
have been enlarged for quite some time now) are finally going down. J Alright well that was
a long first blog entry. If I have more exciting news today….I’ll be sure to
post.
I love you all and thank you for your continuous support
though all this. I appreciate your thoughts and prayers more than you can
imagine. Until next time, stay classy. J
I’m taking a nap.
Kim
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