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Monday, August 27, 2012

Day 512: We may encounter many defeats but we must not be defeated...

Well it's back to Monday and I've been in here for 17 days. This reminds me too much of my mercy days when I was in for like 25 days or something. Except Mercy was so much "cushier," as I always bring that up everytime I write about the two. But I'm growing to tolerate it.

This morning was yet another rough night. I don't remember my blog from the night before and I hate going back and reading them the night before because there are so many mistakes that I've made that I want to change. But I don't. I want people to experience the chemo-ness in full. Short term memory and all....because chemo brain IS real. I forget things I'm talking about, and my mind is just scattered in general (if you know me at all) that when I'm on medication, it's 40x's worse. But God loves me anyway. Today it hasn't been too bad but now I find myself falling asleep at the drop of the hat. I watch a lot less TV so what else do I do than? really, I couldn't answer that question. This calls for an experiment....to be called.....A day in the life of Kim Begay. I'm going to sit with paper right beside me and record all that I do and what gets done to me (vitals, medication, converation...) Etc. This will start at midnight.....if I remember, which I probably will because it seems as though I have an internal clock that wakes me up then for no particular reason.

I think I was going to do this in my past blog....but since my sleep has probably been cut because old people wake up early an all, I think I can manage.

Anyways, back to this morning, it was terrible. My nurse didn't have very good bedside manners and it was really like a person collecting his/her paycheck. Sure I understand it's the night shift, but you chose it and had to accept it. He was just careless in everything he did and never gave off any type of remorse for waking me up, even though I tend to wake up pretty easy and unless I'm dealing with extreme pain or nausea, I even try to be pleasant. It reminded me of teachers who do the same thing, collect the pay check, abuse the system, and really, it's the kids who are suffering. I don't know how else to put that out there without putting him on blast because that really isn't what this blog is about. Its about the positives and the unexpectedness one or familly's can go though relating to the cancer experience. Anyways, just know I had a terrible nurse, who shall remain nameless.

Other sub sequential events followed my awful morning that I care not to share on here because it will lead to an emotional break down (that is quite normal)  for patients to have. I'd rather not relive those moments, I just pray and hope that no one has to experience it. I'll leave it at that. Don't ask me privately, because the only response will be "huh?"

So after an emotional breakdown early this morning, I fell asleep hard and slept until around 10am and debated on whether or not to call down to brunch but then realized that my stomach is getting mainly upset when I fill it with products like dairy (go figure) because it's hard to break down (who would've thunk) so my morning cereal that I've been eating everyday, as well as my toasted bagel with creme cheese wasn't exactly the best thing I could've been putting in my body at the beginning of the day. But you learn as you go and I definitely did. Right now, I'm on a chicken noodle soup diet because that seems to be getting the job done and anytime I want it, I have crackers on deck and even a Shasta Twist to go with it just in case. My carbonation craving is back (the sensation that you get as soon as you take your first drink of a newly opened bottle or can) so forget yellow gatorade (that's chemo drink b/c of electrolytes and sugar), I'm all about the CANS of coke, sprite, cherry coke, Lemon-Lime coke perhaps? don't rush up here with a 24 pack of little coke, just a mini six pack will do because I'll only drink the first half of it. LOL. WOW, I just read that again and NO i'm not saying if you visit you have to bring one....but many of you ask if I want something. And that's my want. LOL. I'm so picky.

Well it's 9pm and every night at 9 I watch King of Queens on TV (my only show for the day) and I need to get up and make this soup. Have a good night....No word on release yet, but like I said, the doctor is being cautious and I ran a fever last night so blood cultures will be done in the morning! :)

Good night,

Love you all.

Kim


Sunday, August 26, 2012

Day 511: Everybody is sleeping...

I think the whole OKC metro is sleeping. myself influded. i've been waking up to bizarre dreams, so bizarre that If I don't automatcally tell someone I'll forget them.

Today I got three surprises in the mail, one, a card from a fellow HS soccer buddy explaining how bad she feels seeing as though I have to go through this AGAIN. :( Another was from her Mother, who again, expressed her deepest regret of my relapse. Someimes I need tese constant reminders to remind myself that I'm not superhuman, no one is. Were just people who have chosen to take a different route in life. It will get us to the same destinations, people will just have to endure me.

And lastly, but never leastly, a sweet friend of mine. sent a me a "care ackage" that I received and it was WONDERFUL. I had all the miscellaneous thing I may have not.  at my finger tips. Some may or may have not doctor approved but like said before, YOLO! lol.  I got a new set of NEW set of bed sheets....which is perfect because I spilled all my late night chicken noodle soup . I had to use ugly white sheets for the night. :) She also got me a new fuzzy zebra throw pillow (for the cold headed nights, and a fuzzy blanket they Ine been napping all day in it and it is perfect!! Thank you Geri! :) There were a lot more knick knacks but I chose to keep these as more gifts to myself! To give my elf a surprise everyday. :)

on the medical side, regular finger pricks are taken; I've now had to "scares"  but I think it was the quality of snow.....HAHAHAHAHAHA. See this is just went through my mind As I wrote, I was thinking about learning to how snow board. I was going to erase it BUT once I realized what was going go...I thought I'd throw you off. LOL. it's that bizzarre? So this blog could be worse.
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Anways, back to medical news, I received one unit of blood KEEP DONATING) and ONE bag of platelets...fairly early this evening. this Sunday shift has their stuff together.

Before transfusion my platelets were at an 8...White Blood Cell (0.1).....Red Blood Cell (3.6) and platelets were an 8.

so just make sure you're lean and sick ree. My potassium also slipped a little below normal so they're giving giving me a potassium IV help boost me up. As always, the usual's are low and "monitoring: I must do.

Saturday, August 25, 2012

Day 511: What hours?

I totally just woke up to my nurse, Fe, pricking my finger, taking my vitals and giving me medications. Not weird at all....but I seriously thought it was 3am!! These past couple days I didn't realized how much i have been relying on morphine to get me through my pain that I might be addiced to it in some way. WHAT?! Even last night when Emily came down to visit with me, I was dozing on and off and today while Sarah waited for nurses to come, I was in a completely relaxed state of mind Constantine asking myself...did you just really say that? lol, I"m sure I sounded silly.


Oh the side effects.

So last night after the WORST day of my life, I managed to get myself up and be transportated to CT scan where they did a CT of my pancreas. When I asked the morning doctors about it, most of them looked dum founded and the typical "i'm not sure yet" answer of "We'll continue to monitor  your levels" came about and I"m back to square one. I had a pretty good bowel movement (considering that I haven't eaten in in the past 48 hours and that was a relief. I think it was all the SERILE water I had to drink right before the CT.

Today was once again an overall relaxing day. I din't really want visitors becase I just wanted to sleep but two ended up coming anyway, and I'm so happy they did.

I noticed that my hair has been coming out a LOT easier so today I told myself....Self, its a goodday to be bald. And I did it. Deontre (an old student of mine) came up and had no idea what hew as in for. Sarah Mae came up too and I don't think she expected it...I mean, it's not everyday someone says.....hey, shave my head. And today I just felt ready. I didn't have once ounce of emotion....almost it was like....okay you might as well get it done now so your hair can at least be fixed during bedride report or doctors rounds. I may get some reaction tomorrow. GOOD.''So for those of you who are sending me the typical, you look becautiful with or without your hair, it always grows back, it'll be back before you know it, people can't even tell if it's a wig....save it. It's soft of annoying. Now the first time....WHOLE different story. (check out that emotional whirlwind post.)

Well it's 9:18pm and my nurse heated me up some SOUP so I'm gonna go enjoy that and then SLEEP. I can't seem to find it when I need it. :)

xoxo

kim

Friday, August 24, 2012

Day 510: 24+ hours

I'm so sorry to have kept everyone so worried. I have had the absolute MOST MISERABLE 24+ hours.

After the Chemotherapy (day 9) I started to feel just sick to my stomach. After visitors left, I had enough energy for my bootleg pedicure and just as soon as I finished that, I laid down to go to sleep because my stomach was hurting pretty bad. I could pinpoint the exact direction and did nothing but complain to the night nurse.

It felt as thought I had to use the restroom every 30 seconds.  I had to stay hunched over at all times and I couldn't even lay down in any way possible to find a 10% comfortable position. So the whole night, I laid as still as possible and took my ambien. I got an OKAY amount of sleep but then, the morning happened.As soon as I woke up my pancreas was all sorts of swollen....or so the doctors say. I just knew I had to use the restroom. I painfully made my way to the restroom and noting. I felt a little up for eating so I ordered some cereal (bad idea) and as soon as I finished that, I felt like I got immediate food poisoning. I wasn't sweating or anything just in a WHOLE LOT OF EXCRUCIATING pain in my stomach (right above the belly button).

So then after complaining endlessly and crying, the nurses started giving me morphine to off set the pain every 2 hours. But morphine is almost an instant action type thing and after about an hour and a half, the pain returned. On top of all of tis, I was still hooked up to fluids and having to make it up and about to go to the restroom.

So yesterday my day went like this....woke up...morphine injection...lay down...get "comfortable"....get up....hunch/walk to the restroom....more morphine. I also have the theory that all the insulin injections I was getting the past two days had something to do with it. Or just the bag of chemo was really that harsh.

So I'm sorry if yesterday you tried to contact me, I was so beyond out of it, if you did get a reply, I was probably high from all the pain killers. I didn't even turn on the TV, radio, anything. I also didn't eat at all nor pretty much drink anything for that matter. On a brighter note, my glucose levels were WAYYY down. THe nurses all day kept trying to get me to at least eat soup but the idea of food in my stomach was TOO MUCH.

So then last night, the same thing happened again. It was an overall uncomfortable mess and I found myself waking up and hunching in a ball sitting indian style in my bed. Luckily I had great nurses who kept onto those doctors about my pain level We got to the point that EVERY 2 hours my pain was rated 9 or 10 out of 10 and nothing would help except morphine.

So today when I woke up, I felt the same, my stomach hurts a little less when I move positions and since my doctors have figured out that when I say I'm in pain....i must mean I'm in pain....they're sending me down to get a CT scan and possibly an ultrasound to check things out. Okay well, I have been sitting for the last 15 minutes and I'm starting to get sick again.

I'm gonna lie here until transport comes to get me because that itself with take a lot of energy. :( :(

Please pray for me. I'll try to write more later.

kim

Wednesday, August 22, 2012

Day 508: Good thing I can type without looking...

Today was an OVERALL GREAT DAY. It was SHOWER day and like I said before....shower days are like heaven. I feel clean and I get new sheets on my bed and I even manage to get enough energy to pick up after myself. I got up relatively early...9 am...and ordered once again a FULL breakfast and between doctors managed to relax and catch a few zzzz's.

The main attending oncologist again shut my head down with the idea of not going home because he's concerned about my counts. But the seed has been planted  that I'm READY to go home and I promise to be good and be hygienic like I know I can be. Everyone is rooting for me because they all know it's absolute torture being here and laying around all day getting fluids (saline) like a boss. Not exactly cool. All it makes me do is use the restroom every hour almost on the hour and it's annoying....especially if I just want to sleep.

Today after my long shower, I got my day 9 of chemo (even though i'm convinced it is only day 8) around 3 or 4 because it seemed to get a little busy around here. My friend Tara came with LUNCH and it was seriously meant to be because I had just ordered nasty chicken breast and baked potato for lunch (still on potato kick) and then Tara was like...what are you doing? Are you hungry? So we got some SUBWAY and when she got here the chemo started. It went over 2 hours and it was just a little tiny bag. meaning...it was more harsh. I got pre-medicated about 30 minutes before with benadryl through an IV (my absolute favorite thing to get because you get all warm and fuzzy inside and just have an opportunity to RELAX completely.) and some steroids so my schedule was so messed up because after the relaxation....I got HUNGRY and ate all my food.

Tara was here for a while then I got two more visitors from my college days, Kyndall and Brent!! They brought me some goodies (snacks) and some SHEETS!! They're so pretty. All three are nurses so it was sorta funny whenever my IV would go off....they were all on alert and they sat and talked nursing stuff and compared places and how lax this place is. lol.

As they were here visiting an old student of mine (2nd year student) Deontre came!! I just love when old students come because it makes me seem like I left a good impact and they care more than outside the classroom. He was doing good and we rambled over his plans for the future.

During the time, they gave me my FIRST finger prick and talk about OUCH. I've been through lots of grueling procedures since all this cancer stuff came about but I was SOOO nervous about getting a glucose test. I freaked out and may or may not have screamed when I got it. My friends laughed at me but I think all those glucose commercials on TV freaked me out even more about the pain. My blood sugar was up in the 300's so they started insulin shots again...I got one in the stomach to bring it down and it just felt weird. Not necessarily because it was a shot in the stomach (I've had PLENTY before) but just the fact that it was insulin that made me nervous. I got another one at 9 to see if it went down and this time it was around 250 or something so they once again gave me another.

After Kyndall, Brent, and Tara left Deontre stuck around and two Tafties (school where I work at) came to visit and brought me a McNellie burger and it was once again....WONDERFUL. :) They stayed a little while to talk, collect my laundry, and dropped off my "bootleg" pedicure stuff.

Then Deontre went home and I got started on my feet. I soaked them in my room, filed, cut, and did the whole pedicure thing myself. Everyone checks feet around here and since I'm diabetic for a little while....feet are important right??? That's what Forrest Gump taught me. LOL.

The ladies who came in were like...uhhh Kim, what are you doing? Then I had to explain to them it's been so long since i've got a GOOD manicure/pedicure and they instantly understood. So until I get out of here....this will have to do. My feet feel 100x's better and tomorrow I'll paint them a little.


The chemo tonight made my stomach pretty upset (which may be a combination of eating so MUCH these past two days, compared to the first 7 days) so I had to lay down curled in a ball for a while. My stomach still kinda hurts but it's almost ambien time so I'll tough it out for now. I got Nausea injection to help but it has yet to kick in. I hope this isn't any indication for my day tomorrow....it's going to be rough if it is.

Well, other than that, I'm stocked up on chemo craving snacks and I'm ready to go to sleep. Oh my weight is down 14 lbs since I got here but they said I actually gained 3 lbs back the past 2 days since my appetite has been good. No where near how skinny I was last year but most of my liver and spleen function has returned and my food isn't just sitting like it was when I first got admitted. Thank you jesus!!

Okay well, I'm about to call up this nurse, crawl under my blankets, put on a new eye mask I got today and enjoy my much needed night.

I'm so tired (probably because lack of blood) and just had an overall big day with visitors. But I'm thankful for all of them because it's days like this that get me through the worst days that are ahead. I'm so glad I can reflect on this later and smile about a good day like this.

Thanks for the prayers, good thoughts and all that jazz from all of you because without that, life would be a LOT harder. I love you all.....good night!!

xoxo

KIm














Tuesday, August 21, 2012

Day 507: Familiar Nights...

Well it's 11pm and I'm so ready to go to sleep. Except...they are just now giving me my blood. They just finished my platelet transfusion and I already feel my blood clotting! (not really but it's the idea that counts!) A nurse came in who remembers me and she said I actually look healthier and still have color to me so I'm not as pale as I think I am.

Today has been an overall good day. I had rather good company, starting off early around 10, Kim, a visitor from a local church that has heard all my stories through the wonderful Ray family. She came to visit and say hi and just check on me and it feels good to know people are doing what they do and looking after me.

Then, my doctors finally graced my presence as I was eating and their response was....well looks like someone got their appetite back. lol. No shame here.

The new attending doctor said he doesn't want to release me just yet because he's afraid I'll need more transfusions. So the plan is to get antsy enough and bother him enough to get him to let me go home for a few days....I'll work on this scheme later.

After the normal rounds, I got myself comfortable and fell asleep until about lunch time and had a lunch time visitor, JESSICA, and she brought me baked potato soup (my most recent craving) and it was nice to see her. It was a quick sweet visit but much needed. :)

Then, I put myself into a food coma (again) and passed out until doctors, nurses, techs kept coming through and I woke up to the random neighborhood chase going through the neighborhoods I run at when I run outside....scary. But it was midday and no one was harmed, it was just cool seeing the houses I run by on TV. lol.

Then later, the Ray's came by again to say hi and we talked about the latest hospital happenings and caught up and from there my sister came by to pick up some money so she could get me some skin care regimen stuff going since the Chemotherapy just aggravates my skin, I figured I'd start early and test some products before i actually go through all this again. Then my other friend, Ashley, came by with some dinner (YUMMY) and we sat and talked more. I just love visitors because they keep me in touch with just life outside the hospital because hospital talk can be lame and there is only so many interesting stories I can tell. lol. And I like to live vicariously though people while I'm down for the count.....

My sister stayed for a while but she just left. Now I'm ready for this blood transfusion and this ambien so I can SLEEP tonight. It's cold in my room, just how I like it before i go to sleep. :)

Well tomorrow should be good because I won't be so dang tired from my lack of blood and it's shower day!! it's the little things in life that I get excited over....and that's okay.

I'm off of here, love you all.

xoxo

Kim

Day 507: I've had better nights....

So I got NO SLEEP last night what so ever. I tried to do it without my ambien pills and yup, impossible. It seemed like the tech and nurses were on unrelated schedules and I swear every 2 hours they came in to give ice, give meds, take vitals, say hi, chit chat....everything and anything in between. But it is their job. Also the wax guy who was doing the floors decided to start at like 9pm and his shoulder kept hitting my light (as well as other not so gracious patients) on. The lady next door got a hold of him pretty quick and yelled at him for a while for the whole floor so I didn't see a need to say anything.

So today I predict will be a lazy day...seeing as though i'm awake by 9am and not one doctor has came by to see me - word spreads quickly I'm not a morning person, lol. I just ordered breakfast since I've been thinking about it since 6:30am.

Today I ordered an actual breakfast so we'll see how everything tastes. I told the lady on the phone....okay it might be a big random order, IDK where my taste buds are at. So she said, okay....So i got biscuits and gravy, hashbrowns with ketchup, sausage patty extra well done, frosted flakes and reduced fat milk, and orange juice....her response....that's it?? lol. Well I thought it was a lot.

Anyways, the doctors were concerned with my blood pressure last night because they thought  was going to pass out....it got down to 93/49 but I told them I have low blood pressure anyways and since I'm not stressed with much except cancer these days....I'm okay. So they let me off the hook, reviewed some records, and "let me sleep."

Okay well, that's as exciting news as I go so I'm gonna sit in my bed in my room, that BTW Sarah Mae herself came up last night to visit and we rearranged the furniture! It's a bit crowded where I am and I'm still figuring things out but overall, I like it and I can hopefully get through the next three days with a little more ease. :)

Please, please, please, remember that August 30th at Taft Middle School there will be a bone marrow drive in my honor in the library at from 11:30 to 3:30. If you can't make it, word is you can go to your local OBI (oklahoma blood institute) or check out marrow.org and see where you can get a simple cheek swab to help save a life. :)

Also, remember SCENTSY orders are still being held in my honor through a sweet angel on earth, Melissa, and her own scentsy page. All proceeds will benefit directly to me and every bit helps. She has marked everything 10% off for this occasion so go on and enjoy a few scents!

Also people have been asking to send donations for miscellaneous things so a PAY PAL account has been set up in my name. I'm still working on those details but as soon as I get them, I will be sure to post it on here.

Words can't express how much everyone near and far....friends and strangers....have been helping me fight this battle. It makes me so happy to check my website and see the overwhelming response of views per entry I make. Also through facebook all the responses I get to what I post and all the love and support I'm getting from such unselfish people.

All of this is going to work out, I know it, my life has been touched by so many people and there is a reason for this. I feel it.

Well, I'm gonna turn on the tube and watch something before I start to cry & freak the doctors out. lol

Happy Tuesday!

God is good, he's so good to me. :)

Kim